Bibliographic Database on Psychosocial Genetic Counseling
Compiled by Jon Weil, PhD

Dr. Weil compiled this database in the process of writing Psychosocial Genetic Counseling, Oxford University Press, 2000. With a few exceptions, compilation was completed in December 2000, and it has not been updated since then.

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ENL Bibliographic Database on Psychosocial Genetic Counseling (325 KB)

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KEYWORDS, to use with search functions after downloading the Database in ENL, are list below. Otherwise, download the key words in Adobe Acrobat (11 KB) Microsoft Word (41KB) or WordPerfect (11KB) 

A>
abortion, after prenatal dx or ultrasound — see also, genetic abortion
acculturation 
adolescents — genetic counseling of
adoption, genetic testing in  — see, genetic testing in adoption
affected child
agenda — of genetic counseling session
alternate beliefs 
ambivalence —toward affected child, or re genetic counseling as in no-shows/cancellations
amniocentesis
anger
anticipatory grief
anticipatory guidance
anxiety
assimilation
B>
bad news
Bayes theorem
beliefs
bereavement
binarization —  of risk figures
bioethics
burden — perception of
C>
cancer
carrier testing
children —  genetic counseling of
children, genetic testing of — see, genetic testing of children
China — China’s 1995 genetics law
cognitive styles
communication
cont pregn  — continuing pregnancy after medically positive prenatal diagnosis results
coping and defenses
consanguinity
counseling techniques
couples — issues, genetic counseling of
countertransference
critiques within — criticism and/or evaluation by medical geneticists, genetic counselors
critiques without —         criticism and/or evaluation by sociologists, feminist, others from outside the profession
culture of science 
D>
death of child
death wish — parent’s death wish re affected child
decision making — see also, social acceptability
deepening the work
definitions of genetic counseling
demographics
desire for affected child — e.g., individuals with achondroplasia want a child with the disorder disclosure — ethical issue of disclosure to other at risk family members
disabled critique — criticism and/or evaluation from perspective of disabilities rights community
disabilities — impact of disabilities and birth defects on family
distrust — of medical profession/genetics
divorce — impact of genetic disease or affected child on — see also, marital satisfaction
Dor Yeshurim — Hasidic Jewish pre-marital screening system
dying —  stages of and critiques of stages of
E>
engaging the male counselee
ethics
eugenics
E/C— ethnocultural issues
see also
alternate beliefs (how to work with)
decision making
definitions of genetic counseling
distrust
guilt and shame
non-dir — nondirective genetic counseling
richness of non-verbal
F>
Family — see also,  preselection
fathers
feminist — criticism and/or evaluation from feminist perspective
first person accounts — of life with affected individual
G>
gender differences —     in communication and in level of information regarding genetic disorders in the family — see also, kin keeper
genetic discrimination
genetic abortion — see also, abortion
genetic testing
genetic testing of children
genetic testing in adoption
grandparents
grief
guilt and shame
H>
hemophilia in Jewish law
heredity — impact on individual or family dynamics,  e.g., guilt, blame
Huntington disease
hx — history of genetic counseling
I>
infertility
information provision — by genetic counselor
informed consent
initial contacts — of genetic counseling interaction
initial stages —  of genetic counseling session or interaction
intermediary — genetic counselor as
international — genetic counseling in international context
interpreters 
J>
K>
kin keeper — women‘s role in obtaining/transferring genetic information within the family
L>
life cycle
love — role in response to genetic disease
M>
marital satisfaction — see also divorce
meaning of the child
medical setting — impact on counselees of fact that genetic counseling is in a medical setting
mental retardation — counseling counselees with mild mental retardation
metaphors — use in genetic counseling
mixed identity —  individuals or couples with mixed racial/ethnic identity
msAFP
myths
N>
narcissism
narcissistic injury
non-dir — nondirective genetic counseling
nonverbal communication
O>
P>
pedigree as a psychosocial instrument
perinatal loss
pregnancy loss
prenatal diagnosis
preselection —  of "affected individual" within family
presymptomatic testing
probabilities  — especially lay understanding of
public health
Q>
R>
recurrence risks —  presenting
referrals — how to make professional referral
reframing
religion — re genetic counseling
replacement child
reproductive loss
resilience — psychological, of counselees
richness of non-verbal communication

risk perception
risk presentation
rituals
role play
S>
search for meaning
secrets — in family
self-disclosure — by genetic counselor           
self-esteem
sex selection — studies of genetic counselors’ attitudes toward
shame — see guilt and shame
siblings
sickle cell
social acceptability — as element of decision making
social isolation
social supports
stigma
stillbirth
stress — coping with
suicide
supervision — supervision groups for genetic counselors
support groups     
survivor guilt —       after medically positive findings in carrier testing or presymptomatic testing
T>
technological imperative
terminology — importance of non-pejorative terminology
therapy — psychotherapy
transitions — in family
Tuskegee —”Tuskegee experiment”
U>
V>
value of listening —         i.e., genetic counselor not addressing an issue implies it is too difficult or scary for the genetic counselor to accept
W>
what happens —  research concerning what actually happens in genetic counseling sessions
what would you do? —  the many meanings of this question when asked by counselee
why? — existential question, Why did this happen to me or to my family?
X>
XAFP — see msAFP
Y>
Z>

(Updated 12/9/05)