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Bibliographic
Database on Psychosocial Genetic
Counseling - P-S
Dr. Weil compiled this database in the
process of writing Psychosocial Genetic Counseling, Oxford University
Press, 2000. With a few exceptions, compilation was completed in December 2000,
and it has not been updated since then.
Packman
WL, Crittenden MR, Schaeffer E, Bongar B, Fischer JBR, Cowan MJ
(1997) Psychosocial consequences of bone marrow transplantation in
donor and nondonor siblings. Developmental and Behavioral
Pediatrics 18: 244-273
Palmer
CGS, Sainfort F (1993) Toward a new conceptualization and
operationalization of risk perception within the genetic
counseling domain. J Genet Counsel 2: 275-294
Palmer
S, Spencer J, Kushnick T, Wiley J, Bowyer S (1993) Follow-up
survey of pregnancies with diagnoses of chromosomal abnormality. J
Genet Counsel 2: 139-152
Panter-Brick
C (1992) Coping with an affected birth:
Genetic counseling in Saudi Arabia. J Child Neurol 7:
S69-S72
Parens
E, Asch A (2000) Prenatal Testing and Disability Rights
Washington DC Georgetown
University Press
Pargament
KI (1997) The Psychology of Religion and Coping:
Theory, Research, Practice. Guilford, New York
Parkes
CM (1988) Bereavement as a psychosocial transition:
Process of adaptation to change. Journal of Social Issues
44: 53-65
Parson
E, Bradley D (1994) Ethical issues in newborn screening for
Duchenne muscular dystrophy:
The question of informed consent. In: Clarke A (ed) Genetic
Counseling: Practice
and Principles. Routledge, London, pp 95-112
Parsons
E, Atkinson P (1992) Lay constructions of genetic risk. Sociology
of Health & Illness 14: 437-455
Parsons
EP, Clarke AJ (1993) Genetic risk:
Women's understanding of carrier risks in Duchenne muscular
dystrophy. J Med Genet 30: 562-566
Parsons
E, Atkinson P (1993) Genetic risk and reproduction. Sociological
Review 41: 679-706
Parsons
E (1997) Culture and genetics:
Is genetics in society or society in genetics? In: Clarke
A, Parsons E (eds) Culture, Kinship and Genes:
Towards Cross-Cultural Genetics. St. Martin's, New York, pp
245-260
Patterson
JM, McCubbin HI (1983) Chronic illness:
Family stress and coping. In: Figley CR, McCubbin HI (eds)
Stress and the Family, Vol II:
Coping with Catastrophe, vol II. Brunner/Mazel, New York,
pp 21-36
Paul N,
Kavanagh L (1990) Genetic Services for Underserved Populations.
Birth Defects 26
Paúl
C, Martin I, Silva MdR, Silva M, Coutinho P, Sequeiros J (2000)
Living with Machado-Joseph disease in a small rural community of
the Tagus Valley. Community Genet 2: 190-195
Pearn
JH (1973) Patients' subjective interpretation of risks offered in
genetic counselling. J Med Genet 10: 129-134
Pencarinha
DF, Bell NK, Edwards JG, Best RG (1992) Ethical issues in genetic
counseling: A
comparison of M.S. counselor and medical geneticist perspectives.
J Genet Counsel 1: 19-30
Penchaszadeh
VB (1993) Reproductive health and genetic testing in the third
world. Clin Obstet Gynecol 36: 485-495
Peters
JA (1994) Suicide prevention in the genetic counseling context. J
Genet Counsel 3: 199-214
Peters
JA (1994) Familial cancer risk part I:
Impact on today's oncology practice. Journal of Oncology
Management Sept/Oct: 18-30
Peters
JA (1994) Familial cancer risk part II:
Breast cancer risk counseling and genetic susceptibility
testing. Journal of Oncology Management Nov/Dec: 14-22
Peters
J (1994) Breast cancer risk counseling. Genetic Resource 8: 20-25
Peters
JA, Stopfer JE (1996) Role of the genetic counselor in familial
cancer. Oncology 10: 159-166
Peters-Brown
T, Fry-Mehltretter L (1996) Genetic counseling for pregnant
adolescents. J Genet Counsel 5: 155-168
Petrucelli
N, Walker M, Schorry E (1998) Continuation of pregnancy following
the diagnosis of fetal
sex chromosome abnormality: A
study of parents' counseling needs and experiences. J Genet
Counsel 7: 401-415
Phipps
S, Zinn AB (1986) Psychological response to amniocentesis: I. Mood state and adaptation to pregnancy. Am J Med Genet 25:
131-142
Phipps
S, Zinn AB (1986) Psychological response to amniocentesis: II. Effects of coping style. Am J Med Genet 25: 143-148
Physicians
RCo (1989) Prenatal Diagnosis and Genetic Screening: Community and Service Implications. Royal College of
Physicians, London
Piers
G, Singer MB (1971) Shame and Guilt:
A Psychoanalytic and a Cultural Study. W. W. Norton, New
York
Pinderhughes
E (1989) Understanding Race, Ethnicity, and Power. Free Press, New
York
Pines
AM (1988) Coping with burnout in genetic counseling. In: Ball S
(ed) Strategies in Genetic Counseling:
The Challenge of the Future. Human Sciences, New York, pp
109-116
Ponder
M, Murton F, Hallowell N, Statham H, Green J, Richards M (1998)
Genetic counseling, reproductive behavior and future reproductive
intentions of people with neurofibromatosis type 1 (NF1). J Genet
Counsel 7: 331-344
Porter
IH (1977) Evolution of genetic counseling in America. In: Lubs HA,
de la Cruz F (eds) Genetic Counseling. Raven, New York, pp 17-34
Press
NA, Browner CH (1993) 'Collective fictions':
Similarities in reasons for accepting maternal serum
alpha-fetoprotein screening among women of diverse ethnic and
social class backgrounds. Fetal Diagn Ther 8: 97-106
Press
N, Browner CH (1995) Risk, autonomy, and responsibility. Hastings
Cent Rep 25: S9-S12
Press
N, Browner CH (1997) Why women say yes to prenatal diagnosis. Soc
Sci Med 45: 979-989
Press
N, Browner CH (1998) Characterstics of women who refuse an offer
of prenatal diagnosis: Data
from the California maternal serium alpha fetoprotein blood test
experience. Am J Med Genet 78: 433-445
Press
N, Clayton EW (2000) Genetics and public health:
Informed consent beyond the clinical encounter. In: Khoury
MJ, Burke W, Thomson EJ (eds) Genetics and Public Health in the
21st Century: Using
Genetic Information to Improve Health and Prevent Disease. Oxford,
New York, pp 489-503
Press
N, Clayaton EW (2000) Genetics and public health:
Informed consent beyond the clinical encounter. In: Khoury
MJ, Burke W, Thomson EJ (eds) Genetics and Public Health in the
21st Century: Using
Genetic Information to Improve Health and Prevent Disease. Oxford,
New York, pp 505-526
Preto
NG (1989) Transformation of the family system in adolescence. In:
Carter B, McGodrick M (eds) The Changing Family Life Cycle:
A Framework for Family Therapy, 2nd edn. Allyn and Bacon,
Boston, pp 255-283
Pryde
PG, Drugan A, Johnson MP, Isada NB, Evans MI (1993) Prenatal
diagnosis: Choices
women make about pursuing testing and acting on abnormal results.
Clin Obstet Gynecol 36: 496-509
Ptacek
JT, Eberhardt TL (1996) Breaking bad news:
A review of the literature. JAMA 276: 496-502
Punales-Morejon
D, Penchaszadeh VB (1992) Psychosocial aspects of genetic
counseling: Cross-cultural
issues. Birth Defects 28: 11-15
Punales-Morejon
D, Rapp R (1993) Ethnocultural diversity and genetic counseling
training: The
challenge for a twenty-first century. J Genet Counsel 2: 155-158
Quaid
KA (1992) Presymptomatic testing for Huntington disease:
Recommendations for counseling. J Genet Counsel 1: 277-302
Quaid
KA, Wesson MK (1995) Exploration of the effects of predictive
testing for Huntington disease on intimate relationships. Am J Med
Genet 57: 46-51
Quinn
WH (1989) Scripts, transaction, and the transition in family
relations over the life course. In: Mancini JA (ed) Aging Parents
and Adult Children. Lexington Books, Lexington MA, pp 45-62
Qureshi
N (1997) The relevance of cultural understanding to clinical
genetic practice. In: Clarke A, Parsons E (eds) Culture, Kinship
and Genes: Towards Cross-Cultural Genetics. St. Martin's, New York, pp
111-119
Ramsay
L (1994) Genetic reductionism and medical genetic practice. In:
Clarke A (ed) Genetic Counselling:
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Randall-David
E (1989) Strategies for Working with Culturally Diverse
Communities and Clients. Association for the Care of Children's
Health, Bethesda
Rando
TA (1983) An investigation of grief and adaptation in parents
whose children have died from cancer. J Pediatr Psychol 8: 3-20
Rando
TA (1985) Bereaved parents: Particular
difficulties, unique factors, and treatment issues. Soc Work 30:
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Raphael
B, Middleton W, Martinek N, Misso V (1993) Counseling and therapy
of the bereaved. In: Stroebe MS, Stoebe W, Hansson RO (eds)
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Rapp R
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story. In: Arditti R, Klein RD, Minden S (eds) Test-tube Women:
What Future for Motherhood? Pandora Press, Boston, pp
313-328
Rapp
(1988) Chromosomes and communication:
The discourse of genetic counseling. Med Anthropol Q 2:
143-157
Rapp R
(1988) The power of "positive" diagnosis:
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Michaelson KL (ed) Childbirth in America:
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Rapp R
(1988) Moral pioneers: Women,
men and fetuses on a frontier of reproductive technology. Women
and Health 13: 101-116
Rapp R
(1989) Chromosomes and communication:
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Rapp R
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Uncertain Terms: Negotiating
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Rapp R
(1992) Accounting for amniocentesis. In: Lindenbaum S, Lock M (eds)
Analysis in Medical Anthropology. University of California Press,
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Rapp R
(1993) Amniocentesis in sociocultural perspective. J Genet Counsel
2: 183-196
Rapp R
(1993) Sociocultural differences in the impact of amniocentesis:
An anthropological research report. Fetal Diagn Ther 8:
90-96
Rapp R
(1998) Refusing prenatal diagnosis:
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Science, Technology & Human Values 23: 45-70
Rapp R
(1999) Testing Women, Testing the Fetus:
The Social Impact of Amniocentesis in America. Routledge,
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Rauch JB, Curtiss CR (1992) Taking a Family Health/Genetic History:
An Ethnocultural Learning Guide and Handbook. University of
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Reed S
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Resta
RG (1992) The twisted helix:
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Resta
RG (1993) The crane's foot: The
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Resta
RG (1995) Whispered hints. Am J Med Genet 59: 131-133
Resta
RG (1997) Eugenics and non-directiveness in genetic counseling. J
Genet Counsel 6: 255-258
Resta
RG (1997) The historical perspective:
Sheldon Reed and 50 years of genetic counseling. J Genet
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Resta
RG (2000) Psyche and Helix: Psychogical
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Retsinas
J (1991) The impact of prenatal technology upon attitudes toward
disabled infants. Research in the Sociology of Health Care 9:
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Reynolds
BD, Puck MH, Robinson A (1974) Genetic counseling:
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Riccardi
VM, Kurtz SM (1983) Communication and Counseling in Health Care.
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Richards
MPM (1993) The new genetics:
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Richards
MPM, Hallowell N, Green JM, Murton F, Statham H (1995) Counseling
families with hereditary breast and ovarian cancer:
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Richards
M (1996) Families, kinship and genetics. In: Marteau T, Richards M
(eds) The Troubled Helix: Social
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Richardson
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J, Tennes K, Robinson A (1975) Amniocentesis:
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JS (1989) Chronic illness and the family life cycle. In: Carter B,
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Rolland
JS (1994) Families, Illness, and Disability:
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Root
MPP (1992) Racially Mixed People in America
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MPP (1996) The Multiracial Experience:
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Rothman
BK (1986) The Tentative Pregnancy:
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BK (1988) The decision to have or not to have amniocentesis for
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PT, Lipkin JJ, Fisher L (1984) Screening and genetic counseling
for beta-thalassemia trait in a population unselected for
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CD, Headings VE, Molnar ET, Ampy FR (1995) Resilience in siblings
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SS (1993) The death of a child is forever:
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JK, Mahoney MJ (1992) A protocol to address the depressive effects
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HB, Ponterotto JG, Borodovsky LG (1991) White racial identity
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Sagi M,
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KA (1994) Counseling About Cancer:
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KA, Stopfer JE, Peters JA, Knell E, Rosenthal G (1997)
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KA, Kalkbrenner KJ (1998) Professional status survey 1998.
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(Updated
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