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Bibliographic
Database on Psychosocial Genetic
Counseling
- L-O
Dr. Weil compiled this database in the
process of writing Psychosocial Genetic Counseling, Oxford University
Press, 2000. With a few exceptions, compilation was completed in December 2000,
and it has not been updated since then.
Laborde
PR, Seligman M (1991) Counseling parents with children with
disabilities. In: Seligman M (ed) The Family with a Handicapped
Child, 2nd edn. Allyn and Bacon, Boston, pp 337-368
Laird J
(1998) Theorizing culture: Narrative
ideas and practice principles. In: McGoldrick M (ed) Re-visioning
Family Therapy: Race,
Culture, and Gender in Clinical Practice. Guilford, New York, pp
20-36
Lalos A
(1999) Breaking bad news concerning fertility. Human Repro 14:
581-585
Lamb
ME, Meyer DJ (1993) Fathers of children with special needs. In:
Sigman M (ed) The Family with a Handicapped Child, 2nd edn. Allyn
and Bacon, Boston, pp 151 - 179
Landenburger
G, Delp KJ (1987) An approach for supportive care before, during,
and after selective abortion. Birth Defects 23: 84-88
Lapham
EV, Shevlin KM (1986) The Impact of Chronic Illness on
Psychosocial Stages of Human Development
Washington D C Dept.
of Social Work, Georgetown University Hospital and Medical Center
Lapham
EV, Kozma C, Weiss JO (1996) Genetic discrimination:
Perspectives of consumers. Science 274: 621-624
Lappé
M (1993) Risk and the ethics of genetic choice. In: Bartels DM,
LeRoy BS, Caplan AL (eds) Prescribing Our Future:
Ethical Challenges in Genetic Counseling. Aldine de Gruyter,
New York, pp 57-63
Lazarus
RS (1984) The costs and benefits of denial. In: Dohrenwend BS,
Dohrenwend BP (eds) Stressful Life Events and Their Contexts.
Rutgers University Press, New Brunswick, pp 131-156
Lazarus
RS (1993) Coping theory and research:
Past, present, and future. Psychosom Med, vol 55, pp
234-247
Lazarus
RS (1999) Stress and Emotion:
A New Synthesis. Springer, New York
Lea DH
(1996) Emerging quality improvement measures in genetic
counseling. J Genet Counsel 5: 123-137
Lee RV,
d'Alauro F, White LM, Cardinal J (1988) Southeast Asian folklore
about pregnancy and parturition. Obstet Gynecol 71: 643-645
Lee E
(1997) Working with Asian Americans:
A Guide for Clinicians
New York Guilford
Lee E
(1997) Cross-cultural communication— therapeutic use of
interpreters. In: Lee E (ed) Working with Asian Americans—A
Guide for Clinicians. Guilford, New York, pp 477-489
Lemke
AA, Dayal S, Geibel LJ (1998) Preconception genetic counseling: Three years of experience at a community-based health center.
J Genet Counsel 7: 71-85
Leonard
CO, Chase GA, Childs B (1972) Genetic counseling:
A consumers' view. New England Journal of Medicine 287:
433-439
Lerman
C, Audrain J, Croyle RT (1994) DNA-testing for heritable breast
cancer risks: Lessons
from traditional genetic counseling. Ann Behav Med 16: 327-333
Lerman
C, Lustbader E, Rimer B, Daly M, Miller S, Sands C, Balshem A
(1995) Effects of individualized breast cancer risk counseling:
A randomized trial. J Natl Cancer Inst 87: 286-292
Lerman
C, Schwarz MD, Miller SM, Daly M, Sands C, Rimer BK (1996) A
randomized trial of breast cancer risk counseling:
Interacting effects of counseling, education level, and
coping style. Health Psychol 15: 75-83
Lerman
C, Narod S, Schulman K, Hughes C, Gomez-Caminero A, Bonney G, Gold
K, Trock B, Main D, Lynch J, Fulmore C, Snyder C, Lemon SJ, Conway
T, Tonin P, Lenoir G, Lynch H (1996) BRCA1 testing in families
with hereditary breast-ovarian cancer:
A prospective study of patient decision making and
outcomes. JAMA 275: 1885-1892
Lerman
C, Biesecker B, Benkendorf JL, Kerner J, Gomez-Caminero A, Hughes
C, Reed MM (1997) Controlled trial of pretest education approaches
to enhance informed decision-making for BRCA1 gene testing. J Natl
Cancer Inst 89: 148-157
Lew LS
(1990) Understanding the Southeast Asian health care consumer:
Bridges and barriers. Birth Defects 26: 147-154
Lewis
HB (1971) Shame and Guilt in Neurosis. International Universities
Press, New York
Lewis
E, Page A (1978) Failure to mourn a stillbirth:
An overlooked catastrophe. Br J Med Psychol 51: 237-241
Lewis
FM (1996) The impact of breast cancer on the family:
Lessons learned from the children and adolescents. In:
Baider L, Cooper CL, de-Nour AK (eds) Cancer and the Family.
Wiley, Chichester, pp 271-287
Lewontin
R (1982) Human Diversity. Scientific American Books, New York
Liede
A, Metcalfe K, Hanna D, Hoofar E, Snyder C, Durham C, Lynch HT,
Narod SA (2000) Evaluation of the needs of male carriers of
mutations in BRCA1 or BRCA2 who have undergone genetic counseling.
Am J Hum Genet 67: 1494-1504
Liede
A, Metcalfe K, Hanna D, Hoodfar E, Snyder C, Durham C, Lynch HT,
Narod SA (2000) Evaluation of the needs of male carriers of
mutations in BRCA1 or BRCA2 who have undergone
genetic testing. Am J Hum Genet 67: 1494-1504
Likhite
ML (2000) The interface between countertransference and projective
identification in a case presented to peer supervision. J Genet
Counsel 9: 417-424
Lin-Fu
JS (1988) Population characteristics and health care needs of
Asian Pacific Americans. Public Health Reports:
Journal of the U.S. Public Health Service
Lin-Fu
JS (1990) Responses to the keynote address. Birth Defects 26:
21-24
Lin-Fu
JS (1994) Ethnocultural barriers to health care:
A major problem for Asian and Pacific Islander Americans.
Asian American and Pacific Islander Journal of Health 2: 290-298
Lindemann
E (1944) Symptomatology and management of acute grief. Am J
Psychiatry 101: 141-148
Lipkin
M, Fisher L, Rowley PT, Loader S, Iker HP (1986) Genetic
counseling of asymptomatic carriers in a primary care setting. Ann
Intern Med 105: 115-123
Lippman
A (1991) Reseach studies in applied human genetics:
A quantitative analysis and critical review of recent
literature. Am J Med Genet 41: 105-111
Lippman
A (1991) Prenatal genetic testing and screening:
Constructing needs and reinforcing inequities. Am J Law Med
17: 15-50
Lippman
A, Wilfond BS (1992) Twice-told tales:
Stories about genetic disorders. Am J Hum Genet 51: 936-937
Lippman
A (1992) Led (astray) by genetic maps:
The cartography of the human genome and health care. Soc
Sci Med 35: 1469-1476
Lippman
A (1993) Prenatal genetic testing and geneticization:
Mother matters for all. Fetal Diagn Ther 8: 175-188
Lippman
A (1994) Prenatal genetic testing and screening:
Constructing needs and reinforcing inequities. In: Clarke A
(ed) Genetic Counseling: Practice
and Principles. Routledge, London, pp 142-186
Lippman-Hand
A, Fraser FC (1979) Genetic counseling:
Provision and reception of information. Am J Med Genet 3:
113-127
Lippman-Hand
A, Fraser FC (1979) Genetic counseling—the postcounseling period
I. Parent's perceptions of uncertainty. Am J Med Genet 4:
51-71
Lippman-Hand
A, Fraser FC (1979) Genetic counseling—the postcounseling period
II. Making reproductive choices. Am J Med Genet 4: 73-87
Lippman-Hand
A, Fraser FC (1979) Genetic counseling:
Parents' responses to uncertainty. Birth Defects 15:
325-339
Lopez
LL (1987) Between hope and fear:
The psychology of risk. Advances in Experimental Social
Psychology 20: 255-295
Lopez-Rangel
E (1996) Latino culture. In: Fisher NL (ed) Cultural and Ethnic
Diversity: A Guide
for Genetics Professionals. Johns Hopkins University Press,
Baltimore, pp 19-35
Louro
JM (1981) Genetics and birth defects. In: Applewhite SR, Busbee
DL, Borgaonkar DS (eds) Genetic Screening and Counseling:
a Multidisciplinary Perspective. Charles R Thomas,
Springfield IL
Lubinsky
MS (1993) Scientific aspects of early eugenics. J Genet Counsel 2:
77-92
Lubinsky
MS (1994) Bearing bad news: Dealing
with the mimics of denial. J Genet Counsel 3: 5-12
Lubs
M-L (1979) Does genetic counseling influence risk attitudes and
decision making? Birth Defects 15: 355-367
Lubs
HA, de la Cruz F (1977) Genetic Counseling
New York Raven
Lum RG
(1987) The patient-counselor relationship in a cross-cultural
context. Birth Defects 23: 133-143
Lum RG,
Whipperman L (1987) Practical methods in reaching and counseling
the new American. Birth Defects 23: 188-205
Lynch
EW, Hanson MJ (1992) Developing Cross-Cultural Competence: A Guide for Working with Young Children and Their Families
Baltimore Paul
H. Brookes
Lynch
HT, Lemon SJ, Durham C, Tinley ST, Connolly C, Lynch JF, Surdam J,
Orinion E, Slominski-Caster S, Watson P, Lerman C, Tonin P, Lenoir
G, Serova O, Narod S (1997) A descriptive study of BRCA1 testing
and reactions to disclosure of test results. Cancer 79: 2219-2228
Lynch
EW (1998) Developing cross-cultural competence. In: Lynch EW,
Hanson MJ (eds) Developing Cross-Cultural Competence:
A Guide for Working with Children and Their Families, 2nd
edn. Paul H Brookes, Baltimore, pp 47-86
Lynch
EW, Hanson MJ (1998) Developing Cross-Cultural Competence: A Guide for Working with Children and Their Families
2nd Baltimore
Paul H Brookes
Lynch
EW (1998) Conceptual framework:
From culture shock to cultural learning. In: Lynch EW,
Hanson MJ (eds) Developing Cross-Cultural Competence:
A Guide for Working with Children and Their Families, 2nd
edn. Paul H Brookes, Baltimore, pp 23-45
MacKenzie
RG (1991) Substance abuse. In: Hendee WR (ed) The Health of
Adolescents: Understanding
and Facilitating Biological, Behavioral, and Social Development.
Jossey-Bass, San Francisco, pp 186-210
Macks J
(1988) Women and AIDS: Countertransference
issues. Soc Casework 69: 340-347
MacLachlan
M (1997) Culture and Health. Wiley, Chichester
Magyari
PA, Wedehase BA, Ifft RD, Callanan NP (1987) A supportive
intervention protocol for couples terminating a pregnancy for
genetic reasons. Birth Defects 23: 75-83
Markens
S, Browner CH, Press N (1999) 'Because of the risks': How US pregnant women account for refusing prenatal
screening. Soc Sci Med 49: 359-369
Marks JH, Richter ML (1976) The genetic associate:
A new health professional. Am J Public Health 66: 388-390
Marks
JH, Heimler A, Reich E, Wexler NS, Ince SE (1989) Genetic
Counseling Principles in Action:
A Casebook. Birth Defects 25
Marks
JH (1993) The training of genetic counselors:
Origins of a psychosocial model. In: Bartels DM, LeRoy BS,
Caplan AL (eds) Prescribing Our Future:
Ethical Challenges in Genetic Counseling. Aldine de Gruyter,
New York, pp 15-24
Marshak
LE, Seligman M, Prezant F (1999) Disability and the Family Life
Cycle. Basic Books, New York
Marteau
TM, Slack J (1992) Psychological implications of prenatal
diagnosis for patients and health professionals. In: Brock DJH,
Rodeck CH, Ferguson-Smith MA (eds) Prenatal Diagnosis and
Screening. Churchill Livingstone, Edinburgh, pp 663-673
Marteau
T, Richards MPM (1996) The Troubled Helix:
Social and Psychological Implications of the New Human
Genetics Cambridge
UK Cambridge University Press
Marteau
T, Anionwu E (1996) Evaluating carrier testing:
Objectives and outcomes. In: Marteau T, Richards M (eds)
The Troubled Helix: Social
and Psychological Implications of the New Human Genetics.
Cambridge University Press, Cambridge UK, pp 123-139
Martindale
B (1987) Huntington's chorea:
Some psychodynamics seen in those at risk and in the
responses of the helping professions. Br J Psychiatry 150: 319-323
Marymee
K, Dolan CR, Pagon RA, Bennett RL, Coe S, Fisher NL (1998)
Development of the critical elements of genetic evaluation and
genetic counseling for genetic professionals and perinatologists
in Washington state. J Genet Counsel 7: 133-165
Matloff
ET (1994) Practice variability in prenatal genetic counseling. J
Genet Counsel 3: 215-232
Matloff
ET (1997) Generations lost: A
cancer genetics case report. J Genet Counsel 6: 169-172
Matsui
WT (1996) Japanese families. In: McGoldrick M, Giordano J, Pearce
JK (eds) Ethnicity and Family Therapy, 2nd edn. Guilford, New
York, pp 268-280
McAdoo
HP (1997) Black Families 3rd
Thousand Oaks CA SAGE
McCubbin
HI, Patterson JM (1983) Family transitions:
Adaptation to stress. In: McCubbin HI, Figley CR (eds)
Stress and the Family, Vol
I: Coping with
Normative Transitions, vol I. Brunner/Mazel, New York, pp 5-25
McDaniel
SH, Hepworth J, Doherty WJ (1992) Medical Family Therapy: A Biopsychosocial Approach to Families with Health Problems.
BasicBooks, New York
McGoldrick
M, Pearce JK, Giordan J (1982) Ethnicity and Family Therapy
New York Guilford
McGoldrick
M, Gerson R (1985) Genograms in Family Assessment. W. W. Norton,
New York
McGoldrick
M (1989) Ethnicity and the family life cycle. In: Carter B,
McGoldrick M (eds) The Changing Family Life Cycle:
A Framework for Family Therapy, 2nd edn. Allyn and Bacon,
Boston, pp 69-90
McGoldrick
M (1993) Ethnicity, cultural diversity, and normality. In: Walsh F
(ed) Normal Family Processes, 2nd edn. Guilford, New York, pp
331-360
McGoldrick
M, Giordano J, Pearce JK (1996) Ethnicity and Family Therapy
2nd London
Guilford
McGoldrick
M, Giordan J (1996) Overview:
Ethnicity and family therapy. Ethnicity and Family Therapy.
Guilford, London, pp 1-27
McGoldrick
M (1998) Re-visioning Family Therapy:
Race, Culture, and Gender in Clinical Practice New York Guilford
McGoldrick
M, Gerson R, Shellenberger S (1999) Genograms:
Assessment and Intervention, 2nd edn. W. W. Norton, New
York
McIntosh
P (1995) White privilege and male privilege:
A personal account of coming to see correspondences through
work in Women's Studies. In: Andersen ML, Collins PH (eds) Race,
Class, and Gender: An
Anthology, 2nd edn. Wadsworth, Belmont CA, pp 76-87
McIntosh
P (1998) White privilege: Unpacking
the invisible knapsack. In: McGoldrick M (ed) Re-visioning Family
Therapy: Race,
Culture, and Gender in Clinical Practice. Guilford, New York, pp
147-152
McKinney
MK, Tuber SB, Downey JI (1996) Multifetal pregnancy reduction:
Psychodynamic implications. Psychiatry 59: 393-407
McKusick
VA (1980) A short history of medical genetics. In: Kelly TE (ed)
Clinical Genetics and Genetic Counseling. Year Book Medical
Publishers, Chicago, pp 1-22
McMillen
JC (1999) Better for it: How
people benefit from adversity. Soc Work 44: 455-467
Medicine
Io (1994) Assessing Genetic risks:
Implications for Health and Social Policy. National Academy
Press, Washington DC
Mennie
ME, Compton ME, Gilfillan A, Liston WA, Pullen I, Whyte DA, Brock
DJH (1993) Prenatal screening for cystic fibrosis:
Psychological effects on carriers and their partners. J Med
Genet 30: 543-540
Meryash
DL (1989) Perception of burden among at-risk women of raising a
child with fragile-X syndrome. Clin Genet 36: 15-24
Meyers
M, Weinshel M, Scharf C, Kezur D, Diamond R, Rait DS (1995) An
infertility primer for family therapists:
II. Working
with couples who struggle with infertility. Fam Process 34:
231-240
Meyers
M, Diamond R, Kezur D, Scharf C, Weinshel M, Rait DS (1995) An
infertility primer for family therapists:
I. Medical,
social, and psychological dimensions. Fam Process 34: 219-229
Michie
S, Marteau T (1996) Genetic counseling:
Some issues of theory and practice. In: Marteau T, Richards
M (eds) The Troubled Helix: Social
and Psychological Implications of the New Human Genetics.
Cambridge University Press, Cambridge UK, pp 104-122
Michie
S, Axworthy D, Weinman J, Marteau T (1996) Genetic counselling:
Predicting patient outcome. Psychology and Health 11:
797-809
Michie
S, Bron F, Bobrow M, M MT (1997) Nondirectiveness in genetic
counseling: An
empirical study. Am J Med Genet 60: 40-47
Michie
S, McDonald V, Marteau TM (1997) Genetic counselling: Information given, recall and satisfaction. Patient Education
and Counseling 32: 101-106
Michie
S, French D, Allanson A, Bobrow M, al e (1997) Information recall
in genetic counseling: A
pilot study of its assessment. Patient Education and Counseling
32: 93-100
Michie
S, Marteau TM, Bobrow M (1997) Genetic counselling: The psychological impact of meeting patients' expectations. J
Med Genet 34: 237-241
Michie
S, Weinman J, Marteau TM (1998) Genetic counselors' judgments of
patient concerns: Concordance
and consequences. J Genet Counsel 7: 219-231
Middleton
W, Raphael B, Martinek N, Misso V (1993) Pathological grief
reactions. In: Stroebe MS, Stroebe W, Hansson RO (eds) Handbook of
Bereavement: Theory,
Research, and Intervention. Cambridge University Press, Cambridge
UK, pp 44-61
Middleton
A (1998) Book review: Culture,
Kinship and Genes: Towards
Cross-Cultural Genetics. ed
A Clarke and E Parsons. Am J Hum Genet 63: 289-290
Miezio
PM (1983) Parenting Children with Disabilities:
A Professional Source for Physicians and Guide for Parents.
Marcel Dekker, New York
Miller
SM (1987) Monitoring and blunting:
Validation of a questionnaire to assess styles of
information seeking under stress. J
Pers Soc Psychol 52: 345-353
Miller
SM (1990) To see or not to see:
Cognitive informational styles in the coping process. In:
Rosenbaum M (ed) Learned Resourcefulness:
On Coping Skills, Self-Control, and Adaptive Behavior.
Springer, New York
Mills
MC (1985) Adolescents' reactions to counseling interviews.
Adolescence 20: 83-95
Mintzer
D, Als H, Tronick EZ, Brazelton TB (1984) Parenting an infant with
a birth defect. Psychoanal Study Child 39: 561-589
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S (1974) Families and Family Therapy. Harvard University Press,
Cambridge MA
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S, Fishman HC (1981) Family Therapy Techniques. Harvard University
Press, Cambridge MA
Mirsky
J, Kaushinsky F (1988) Psychological processes in immigration and
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of immigrant students in Israel. J Am Coll Health 36: 329-334
Misra
L, Pai A (1998) Genetic counseling in India:
Challenges, barriers and progress. Perspectives in Genetic
Counseling 20: 6
Mittman
I (1988) Conflict between ancient culture and modern technology.
Perspectives in Genetic Counseling 10: 3-4
Mittman
I (1990) Immigration and the provision of genetic services. Birth
Defects 26: 139-146
Mittman
I, Crombleholme WR, Green JR, Golbus MS (1998) Reproductive
genetic counseling to Asian-Pacific and Latin American immigrants.
J Genet Counsel 7: 49-70
Mittman
IS (1998) Genetic education to diverse communities employing a
community empowerment model. Community Genet 1: 160-165
Mittman
IS, Secundy MG (1998) A national dialogue on genetics and minority
issues. Community Genet 1: 190-200
Mittman
IS, Secundy MG (1998) Introduction. Community Genet 1: 115-117
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B (1997) Kinship and medical genetics:
A clinician's perspective. In: Clarke A, Parsons E (eds)
Culture, Kinship and Genes: Towards
Cross-Cultural Genetics. St. Martin's, New York, pp 27-39
Montgomery
J (1994) The rights and interests of children and those with a
mental handicap. In: Clarke A (ed) Genetic Counseling:
Practice and Principles. Routledge, London, pp 208-222
Morgan
D (1996) The troubled helix:
Legal aspects of the new genetics. In: Marteau T, Richards
M (eds) The Troubled Helix: Social
and Psychological Implications of the New Human Genetics.
Cambridge University Press, Cambridge UK, pp 187-210
Murburg
MM, Price LH, Jalali B (1988) Huntington's disease: Therapy strategies. Family Systems Medicine 6: 290-303
Murphy
EA, Chase GA (1975) Principles of Genetic Counseling. Year Book
Medical Publishers, Chicago
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RF (1976) Psychosocial aspects of genetic counseling. Soc Work
Health Care 2: 13-23
Nakashima
CL (1992) An invisible monster:
The creation and denial of mixed-race people in America.
In: Root MPP (ed) Racially Mixed People in America. Sage, Newbury
Park, CA, pp 162-178
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WC, Pace-Nichols MA, Becvar DS, Napier AY (2000) Handbook of
Family Development and Intervention
New York Wiley
Nilchaikovit
T, Hill JM, Holland JC (1993) The effects of culture on illness
behavior and medical care: Asian
and American differences. Gen Hosp Psychiatry 15: 41-50
Nixon
CD, Singer GHS (1993) Group cognitive-behavioral treatment for
excessive parental self-blame and guilt. Am J Ment Retard 97:
665-672
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WW (1997) African American family life:
An instrument of culture. In: McAdoo HP (ed) Black
Families, 3rd edn. SAGE, Thousand Oaks CA, pp 83-93
Nsiah-Jefferson
L (1993) Access to reproductive genetic services for low-income
women and women of color. Fetal Diagn Ther 8: 107-127
O'Dougherty
MM (1983) Counseling the Chronically Ill Child:
Psychological Impact and Intervention. Lewis Publishing
Co., Lexington MA
Offit K
(1998) Clinical Cancer Genetics:
Risk Counseling and Management. Wiley-Liss, New York
Olkin R
(1999) What Psychotherapists Should Know About Disability.
Guilford, New York
Olney
PN, Olney RS (1993) Harlequin ichthyosis among the Navajo: Counseling issues. J Genet Counsel 2: 3-8
Olshansky
S (1962) Chronic sorrow: A
response to having a mentally defective child. Soc Casework 43:
190-193
Oster
GE, Caro JE (1990) Understanding and Treating Depressed
Adolescents and Their Families. New York, John Wiley
Ota
Wang V (1994) Cultural Competency in Genetic Counseling. J Genet
Counsel 3: 267-279
Ota
Wang V (1998) Introduction. J Genet Counsel 7: 3-13
Ota
Wang V (1998) Curriculum evaluation and assessment of
multicultural genetic counselor education. J Genet Counsel 7:
87-111
Oyama
O, Koenig HG (1998) Religious beliefs and practices in family
medicine. Arch Fam Med 7: 431-435
(Updated
12/9/05)
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