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Bibliographic Database on Psychosocial Genetic
Counseling - H-K
Dr. Weil compiled this database in the
process of writing Psychosocial Genetic Counseling, Oxford University
Press, 2000. With a few exceptions, compilation was completed in December 2000,
and it has not been updated since then.
Haffner
L (1992) Translation is not enough:
Interpreting in a medical setting. West J Med 157: 255-259
Hainsworth
MA, Eakes GG, Burke ML (1994) Coping with chronic sorrow. Issues
Ment Health Nurs 15: 59-66
Hall S,
Bobrow M, Marteau TM (1997) Parents attributions of blame for the
birth of a child with Down syndrome:
A pilot study. Psychology and Health 12: 579-587
Hallowell
N, Murton F, Statham H, Green JM, Richards MPM (1997) Women's need
for information before attending genetic counseling for familial
breast or ovarian cancer: A
questionnaire, interview, and observational study. British Medical
Journal 314: 281-283
Hallowell
N, Statham H, Murton F, Green J, Richards M (1997) "Talking
about chance": The
presentation of risk information during genetic counseling for
breast and ovarian cancer. J Genet Counsel 6: 269-286
Hallowell
N, Statham H, Murton F (1998) Women's understanding of their risk
of developing breast/ovarian cancer before and after genetic
counseling. J Genet Counsel 7: 345-364
Hamilton
NG (1988) Self and Others: Object
Relations Theory in Practice. Jason Aronsons, Northvale NJ
Hand-Mauser
ME (1989) Techniques in systemic family therapy:
Applications for genetic counseling. In: Zellers NJ (ed)
Strategies for Genetic Counseling, vol 2. Human Sciences, New
York, pp 93-120
Harper
PS (1997) China's genetic law. In: Harper PS, Clarke AJ (eds)
Genetics, Society, and Clinical Practice. Bios Scientific, Oxford,
pp 237-246
Harper
PS, Clarke AJ (1997) Genetics, Society, and Clinical Practice.
Bios Scientific, Oxford
Harris
R, Lane B, Harris H, Williamson P, Dodge J, Modell B, Ponder B,
Rodeck C, Alberman E (1999) National confidential enquiry into
counseling for genetic disorders by non-geneticists:
General recommendations and specific standards for
improving care. Br J Obstet Gynaecol 106: 658-663
Hartman
A (1978) Diagrammatic assessment of family relationships. Soc
Casework : 465-476
Hauck
L, Knoki-Wilson UM (1996) Culture of Native Americans of the
Southwest. In: Fisher NL (ed) Cultural and Ethnic Diversity:
A Guide for Genetics Professionals. Johns Hopkins
University Press, Baltimore, pp 60-85
Hayes
CV (1992) Genetic testing for Huntington's disease--A family
issue. NEJM 327: 1449-1451
Headings
VE (1975) Alternative models of counseling for genetic disorders.
Soc Biol 22: 297-303
Headings
VE (1979) Psychological issues in sickle cell counseling. In:
Kessler S (ed) Genetic Counseling:
Psychological Dimensions. Academic Press, New York, pp
185-198
Health
NCfEiMaC (1988) Resources for Clergy in Human Genetic Problems,
2nd edn. available from National Maternal and Child Health
Clearinghouse, 38th and R Streets, N.W., Washington, DC 20057
Heimler
A, Greendale K, Phelps L, Callanan N, Resta R (1990) Workshop:
Countertransference and the genetic counselor. Birth
Defects 26: 133-135
Heimler
A (1997) An oral history of the National Society of Genetic
Counselors. J Genet Counsel 6: 315-336
Henderson
BJ, Maguire BT (1998) Lay representations of genetic disease, and
predictive testing. J Health Psychol 3: 233-241
Hicks
EK, Berg JM (1988) The Genetics of Mental Retardation:
Biomedical, Psychosocial and Ethical Issues Dordrecht, Netherlands
Kluwer Academic
Hill SA
(1994) Motherhood and the obfuscation of medical knowledge: The case of sickle cell disease. Gender & Society 8:
29-47
Hiller
E, Rosenfield JM (2000) The experience of leader-led peer
supervision: Genetic
counselors' perspectives. J Genet Counsel 9: 399-410
Hines
PM, Boyd-Franklin N (1996) African American families. In:
McGoldrick M, Giordano J, Pearce JK (eds) Ethnicity and Family
Therapy, 2nd edn. Guilford Press, New York, pp 66-84
Hines
PM (1998) Climbing up the rough side of the mountain. In:
McGoldrick M (ed) Re-visioning Family Therapy:
Race, Culture, and Gender in Clinical Practice. Guilford,
New York, pp 78-89
Hirschhorn
K (1996) Human Genetics: A
discipline at risk for fragmentation. Am J Hum Genet 58: 1-6
Hoare
CH (1991) Psychosocial identity development and cultural others.
Journal of Counseling and Development 70: 45-53
Hobbs
N, Perrin JM, Ireys HT (1985) Chronically Ill Children and Their
Families. Jossey-Bass, San Francisco
Hobdell
EF, Deatrick JA (1996) Chronic sorrow:
a content analysis of parental differences. J Genet Counsel
5: 57-68
Hodge
SE (1998) A simple, unified approach to Bayesian risk
calculations. J Genet Counsel 7: 235-261
Hof L,
Treat SR (1989) Marital assessment:
Providing a framework for dyadic therapy. In: Weeks GR (ed)
Treating Couples: The
Intersystem Model of the Marriage Council of Philadelphia.
Brunner/Mazel, New York, pp 3-21
Hoffman
L (1981) Foundations of Family Therapy:
A Conceptual Framework for Systems Change. Basic Books, New
York
Hoffmaster
B (1991) The theory and practice of applied ethics. Dialogue XXX:
213-234
Hoffrage
U, Lindsey S, Hertwig R, Gigerenzer G (2000) Communicating
statistical information. Science 290: 2261-2262
Hofmann
AD, Greydanus DE (1989) Principles of psychosocial evaluation and
counseling. In: Hofmann A, Greydanus D (eds) Adolescent Medicine,
2nd edn. Appleton & Lange, Norwalk CT, pp 533-551
Holtzman
NA (1989) Proceed With Caution:
Predicting Genetic Risks in the Recombinant DNA Era. Johns
Hopkins University Press, Baltimore
Hong Y,
Morris MW, Chiu C, Benet-Martínez V (2000) Multicultural minds:
A dynamic contructivist approach to culture and cognition.
American Psychologist 55: 709-720
Hopwood
P (1997) Psychological issues in cancer genetics:
Current research and future priorities. Patient Education
and Counseling 32: 19-31
Hsia YE
(1977) Approaches to the appraisal of genetic counseling. In: A LH,
de la Cruz F (eds) Genetic Counseling. Raven, New York, pp 53-81
Hsia
YE, Hirschhorn K, Silverberg RL, Godmilow L (1979) Counseling in
Genetics.
Hubbard
R (1986) Eugenics and prenatal testing. Int J Health Serv 16:
227-242
Hubbell
FA, Chavez LR, Mishra SI, Valdez RB (1996) Differing beliefs about
breast cancer among Latinas and Anglo women. West J Med 164:
405-409
Huggins
M, Bloch M, Wiggins S, Adams S, Suchowersky O, Trew M, Klimek ML,
Greenberg CR, Eleff M, Thompson LP, Knight J, MacLeod P, Girard K,
Theilmann J, Hedrick A, Hayden MR (1992) Predictive testing for
Huntington disease in Canada:
Adverse effects and unexpected results in those receiving a
decreased risk. Am J Med Genet 42: 508-515
Humphreys
P, Berkeley D (1987) Representing risks:
Supporting genetic counseling. Birth Defects 23: 227-250
Hutton
EM, Thompson MW (1976) Carrier detection and genetic counseling in
Duchenne muscular dystrophy:
a follow-up study. CMAJ 115: 749-752
Huys J,
Evers-Kiebooms G (1992) Decision making in the context of genetic
risk: the use of
scenarios. Birth Defects 28: 17-20
Ilse S
(1995) Precious Lives, Painful Choices:
A Prenatal Decision-Making Guide. Wintergreen, Maple Plain,
MN
Imber-Black
E (1986) Toward a resource model in systemic family therapy. In:
Karpel MA (ed) Family Resources:
The Hidden Partner in Family Therapy. Guilford, New York,
pp 148-174
Imber-Black
E (1989) Idiosyncratic life cycle transitions and therapeutic
rituals. In: Carter B, McGoldrick M (eds) The changing Family Life
Cycle: A Framework for Family Therapy, 2nd edn. Allyn and Bacon,
Boston, pp 149-163
Imber-Black
E (1995) Secrets in Family and Family Therapy. Norton, New York
Isaacs
MB, Montalvo B, Abelsohn D (2000) Therapy of the Difficult
Divorce: Managing
Crises, Reorienting Warring Couples, Working with the Children,
and Expediting Court Processes. Jason Aronson, Northvale, N.J.
Israel
J, Cunningham M, Thumann H, Arnos KS (1992) Genetic counseling for
deaf adults: Communication/language
and cultural considerations. J Genet Counsel 1: 135-153
Israel
J, Cunningham M, Thumann H, Arnos KS (1996) Deaf culture. In:
Fisher NL (ed) Cultural and Ethnic Diversity:
A Guide for Genetics Professionals. Johns Hopkins
University Press, Baltimore, pp 220-239
Jacoby
M (1994) Shame and the origins of self-esteem:
A Jungian approach. Routledge, London
Jacopini
GA, D'Amico R, Frontali M, Vivona G (1992) Attitudes of persons at
risk and their partners toward predictive testing. Birth Defects
28: 113-117
Jalali
B (1988) Ethnicity, cultural adjustment, and behavior:
Implications for family therapy. In: Comas-Diaz L, Griffith
EEH (eds) Clinical Guidelines in Cross-Cultural Mental Health.
John Wiley, New York, pp 9-32
Jecker
N, Carrese J, Pearlman R (1995) Caring for patients in
cross-cultural settings. Hastings Center Rep 25: 6-14
Jendreck
MP (1994) Grandparents who parent their grandchildren: Circumstances and decisions. The Gerontolgist 34: 206-216
Johnson
RL, Tanner NM (1989) Approaching the adolescent patient. In:
Hofmann A, Greydanus D (eds) Adolescent Medicine, 2nd edn.
Appleton & Lange, Norwalk CT, pp 21-32
Johnson
RL (1989) Adolescent growth and development. In: Hofmann A,
Greydanus D (eds) Adolescent Medicine, 2nd edn. Appleton &
Lange, Norwalk CT, pp 9-15
Johnson
SDJ (1990) Toard clarifying culture, race and ethnicity
in the context of multicultural counseling. J Multicultural
Counseling and Development 18: 41-5
Jones
JH (1993) Bad Blood: The
Tuskegee Syphilis Experiment. Free Press, New York
Jung M
(1998) Chinese-American Family Therapy:
A new Model for Clinicians. Jossey-Bass, San Francisco
Kahn MD
(1986) The sibling system: Bonds
of intensity, loyalty and endurance. In: Karpel MA (ed) Family
Resources: The Hidden
Partner in Family Therapy. Guilford, New York, pp 235-258
Kalter
N (1990) Growing Up with Divorce. Free Press, New York
Kamin
LJ (1974) The Science and Politics of I.Q. John Wiley, New York
Kaplan
HI, Sadock BJ (1985) Comprehensive Textbook of Psychiatry 4th Baltimore
Williams & Wilkins
Kaplan
D (1993) Prenatal screening and its impact on persons with
disabilities. Clin Obstet Gynecol 36: 605-612
Karbani
G, Godsi S, Mueller R (1997) The role of unconscious fantasy in
the giving and receiving of genetic counseling. In: Clarke A,
Parsons E (eds) Culture, Kinship and Genes:
Towards Cross-Cultural Genetics. St. Martin's, New York, pp
158-164
Karlin
VL (1986) Late adolescence: Identity
formation. In: Lapham EV, Shevlin KM (eds) The Impact of Chronic
Illness on Psychosocial Stages of Human Development. Dept. of
Social Work, Georgetown University Hospital and Medical Center,
Washington D C, pp 79-87
Karp LE
(1983) The terrible question. Am J Med Genet 14: 1-4
Karp J,
Brown KL, Sullivan MD, Massie MJ (1999) The prophylactic
mastectomy dilemma: A
support group for women at high genetic risk for breast cancer. J
Genet Counsel 8: 163-173
Karpel
MA (1986) Testing, promoting, and preserving family resources: Beyond pathology and power. In: Karpel MA (ed) Family
Resources: The Hidden
Partner in Family Therapy. Guilford, New York, pp 175-232
Kash
KM, Holland JC, Halper MS, Miller DG (1992) Psychological distress
and surveillance behaviors of women with a family history of
breast cancer. J Natl Cancer Inst 84: 24-30
Kaslow
L (1986) School age: Making,
doing, achieving. In: Lapham EV, Shevlin KM (eds) The Impact of
Chronic Illness on Psychosocial Stages of Human Development. Dept.
of Social Work, Georgetown University Hospital and Medical Center,
Washington DC, pp 55-63
Katz-Rothman
B (1986) The Tentative Pregnancy. Viking Penguin, New York
Kaufman
G (1985) Shame: The
Power of Caring, 2nd edn. Schenkman Books, Cambridge MA
Kaufman
G (1996) The Psychology of Shame:
Theory and Treatment of Shame-Based Syndromes, 2nd edn.
Springer, New York
Kelly
PT (1977) Dealing with Dilemma:
A Manual for Genetic Counselors. Springer-Verlag, New York
Kelly
PT (1991) Understanding Breast Cancer Risk. Temple University
Press, Philadelphia
Kelly
PT (1992) Breast cancer risk analysis:
A genetic epidemiology service for families. J Genet
Counsel 1: 155-168
Kenen
RH (1984) Genetic counseling:
The development of a new interdisciplinary occupational
field. Soc Sci Med 18: 541-549
Kennedy
AL (2000) A leader-led supervision group as a model for practicing
genetic counselors. J Genet Counsel 9: 391-397
Kennedy
AL (2000) Supervision for practicing genetic counselors: An overview of models. J Genet Counsel 9: 379-390
Kessler
S (1979) Genetic Counseling:
Psychological Dimensions
New York Academic
Press
Kessler
S (1979) The psychological foundations of genetic counseling. In:
Kessler S (ed) Genetic Counseling:
Psychological Dimensions. Academic Press, New York, pp
17-33
Kessler
S (1979) The genetic counseling session. In: Kessler S (ed)
Genetic Counseling: Psychological
Dimensions. Academic Press, New York, pp 65-105
Kessler
S (1979) The counselor-counselee relationship. In: Kessler S (ed)
Genetic Counseling: Psychological
Dimensions. Academic Press, New York, pp 53-63
Kessler
S (1979) The genetic counselor as psychotherapist. Birth Defects
15: 187-200
Kessler
S (1979) The processes of communication, decision making and
coping in genetic counseling. In: Kessler S (ed) Genetic
Counseling: Psychological Dimensions. Academic Press, New York, pp 35-51
Kessler
S (1980) The psychological paradigm shift in genetic counseling.
Soc Biol 27: 167-185
Kessler
S (1981) Psychological aspects of genetic counseling:
Analysis of a transcript. Am J Med Genet 8: 137-153
Kessler
S, Kessler H, Ward P (1984) Psychological aspects of genetic
counseling. III.
Management of guilt and shame. Am J Med Genet 17: 673-697
Kessler
S, Levine EK (1987) Psychological aspects of genetic counseling.
IV. The
subjective assessment of probability. Am J Med Genet 28: 361-370
Kessler
S (1988) Invited essay on the psychological aspects of genetic
counseling. V.
Preselection: A family coping strategy in Huntington disease. Am J Med
Genet 31: 617-621
Kessler
S, Kessler H, Hicks EK, Berg JM (1988) Psychosocial developments
in the field of genetic counseling. In: Hicks EK, Berg JM (eds)
The Genetics of Mental Retardation:
Biomedical, Psychosocial and Ethical Issues. Kluwer
Academic, Dordrecht, Netherlands, pp 189-199
Kessler
S, Bloch M (1989) Social system responses to Huntington disease.
Fam Process 28: 59-68
Kessler
S (1989) Psychological aspects of genetic counseling:
VI. A critical
review of the literature dealing with education and reproduction.
Am J Med Genet 34: 340-353
Kessler
S (1990) Current psychological issues in genetic counseling. J
Psychosom Obstet Gynecol 11: 5-18
Kessler
S (1992) Psychological aspects of genetic counseling.
VII. Thoughts
on directiveness. J Genet Counsel 1: 9-18
Kessler
S (1992) Psychological aspects of genetic counseling. VIII. Suffering and countertransference. J Genet Counsel 1: 303-308
Kessler
S (1992) Process issues in genetic counseling. Birth Defects 28:
1-10
Kessler
S (1993) Forgotten person in the Huntington disease family. Am J
Med Genet 48: 145-150
Kessler
S (1993) The spouse in the Huntington disease family. Family
Systems Medicine 11: 191-199
Kessler
S (1997) Psychological aspects of genetic counseling:
X. Advanced
counseling techniques. J Genet Counsel 6: 379-392
Kessler
S (1997) Psychological aspects of genetic counseling.
XI. Nondirectiveness revisited. Am J Med Genet 72: 164-171
Kessler
S (1997) Genetic counseling is directive?
Look again. Am J Hum Genet 61: 466-467
Kessler
S (1997) Psychological aspects of genetic counseling.
IX. Teaching
and counseling. J Genet Counsel 6: 287-295
Kessler
S (1998) Psychological aspects of genetic counseling:
XII. More on
counseling skills. J Genet Counsel 7: 263-278
Kessler
S (1999) Psychological aspects of genetic counseling:
XIII. Empathy
and decency. J Genet Counsel 8: 333-343
Kessler
S (2000) Closing thoughts on supervision. J Genet Counsel 9:
431-434
Khoury
MJ, Burke W, Thomson EJ (2000) Genetics and Public Health in the
21st Century: Using
Genetic Information to Improve Health and Prevent Disease. Oxford,
New York
Kilborn
PT (1999) Third of Hispanic Americans do without health coverage.
New York Times, New York, pp A1, A18
Kim KS
(1998) Genetic counseling for confined placental mosaicism: A case report. J Genet Counsel 7: 187-194
Kirchler
E, Palmonari A, Pombeni ML (1993) Developmental tasks and
adolescents' relationships with their peers and their family. In:
Jackson S, Rodriguez-Tomé H (eds) Adolescence and its Social
Worlds. Lawrence Erlbaum, Hove UK, pp 145-167
Kivowitz
J (1977) Counseling parents whose sexual relationship has been
affected by a handicapped child. Medical Aspects of Human
Sexuality 11: 79-80
Kleinman
A (1980) Patients and Healers in the Context of Culture:
An Exploration of the Borderland Between Anthropology,
Medicine, and Psychiatry. University of California Press, Berkeley
Kleinman
A (1988) The Illness Narratives:
Suffering, Healing, and the Human Condition. Basic Books,
New York
Kliman
J (1998) Social class as a relationship:
Implications for family therapy. In: McGoldrick M (ed)
Re-visioning Family Therapy:
Race, Culture, and Gender in Clinical Practice. Guilford,
New York, pp 50-61
Kluckhohn
FR, Strodtbeck FL (1961) Variations in Value Orientations. Row,
Patterson, Evanston, IL
Kohut H
(1966) Forms and transformations of narcissism. J Am Psychoanal
Assoc 14: 243-272
Kolker
A, Burke BM, Phillips JU (1991) Attitudes about abortion of women
who undergo prenatal diagnosis. Research in the Sociology of
Health Care 9: 49-73
Kolker
A, Burke BM (1993) Grieving the wanted child:
Ramifications of abortion after prenatal diagnosis of
abnormality. Health Care for Women International 14: 513-526
Kolker
A, M BB (1993) Sex preference and sex selection:
attitudes of prenatal diagnosis users. Research in the
Sociology of Health Care 10: 213-231
Kolker
A, Merideth Burke B (1994) Prenatal Testing:
A Sociological Perspective. Bergin & Garvey, Westport
CT
Kroeber
TC (1964) The coping functions of the ego mechanisms. In: White RW,
Bruner KF (eds) The Study of Lives:
Essays on Personality in Honor of Henry A. Murray. Atherton
Press, New York, pp 179-198
Kubler-Ross
E (1969) On Death and Dying. Macmillan, New York
Kuliev
A, Greendale K, Penchaszadeh V, Paul NW (1992) Genetic Services
Provision: An
International Perspective. Birth Defects 28
Kuliev
A, Greendale K, Penchaszadeh V (1992) Preface. Birth Defects 28:
vii-viii
Kumabe
KT, Nishida C, Hepworth DH (1985) Bridging Ethnocultural
Diversities in Social Work and Health. University of Hawaii School
of Social Work, Honolulu
Kurtz
SM, Riccardi VM (1979) Nonverbal communication as an element of
genetic counseling. Birth Defects 15: 245-256
(Updated
12/9/05)
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