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Bibliographic Database on Psychosocial Genetic
Counseling - D-G
Dr. Weil compiled this
database in the process of writing Psychosocial Genetic
Counseling, Oxford University Press, 2000. With a few
exceptions, compilation was completed in December 2000, and it has
not been updated since then.
d'Ydewall
G, Evers-Kiebooms G (1987) Experiments of genetic risk perception
and decision making: Explorative
studies. Birth Defects 23: 209-226
Dallaire
L, Lortie G, des Rochers M, Clermont R, Vachon C (1995) Parental
reaction and adaptability to the prenatal diagnosis of fetal
defect or genetic disease leading to pregnancy interruption.
Prenat Diagn 15: 249-259
Daly M,
Farmer J, Harrop-Stein C, Montgomery S, Itzen M, Costalas JW,
Rogatko A, Miller S, Balshem A, Gillespie D (1999) Exploring
family relationships in cancer risk counseling using the genogram.
Cancer Epidemiology, Biomarkers and Prevention 8: 393-398
Daneshpour
M (1998) Muslim families and family therapy. J Marital Fam Ther
24: 355-390
Daniels
R (1971) Concentration Camps USA:
Japanese Americans and World War II. Dryden Press, Hinsdale
IL
Darling
RB (1979) Families Against Society:
A Study of Reactions to Children with Birth Defects. SAGE,
Beverly Hills, CA
Darling
RB, Darling J (1982) Children Who Are different:
Meeting the Challenges of Birth Defects in Society. Mosby,
St. Louis
Darling
RB (1987) The economic and psycho-social consequences of
disability: Family-society
relationships. In: Ferrari M, Sussman MB (eds) Childhood
Disability and Family Systems. Haworth Press, New York, pp 46-61
Darling
RB (1988) Parental entrepreneurship:
A consumerist response to professional dominance. Journal
of Social Issues
Darling
RB (1991) Initial and continuing adaptation to the birth of a
disabled child. In: Seligman M (ed) The Family with a Handicapped
Child, 2nd edn. Allyn and Bacon, Boston, pp 55-90
Darling
RB (1991) Parent-professional interaction:
The roots of misunderstanding. In: Seligman M (ed) The
Family with a Handicapped Child, 2nd edn. Allyn and Bacon, Boston,
pp 119-149
Darr A
(1997) Consanguineous marriage and genetics:
A positive relationship. In: Clarke A, Parsons E (eds)
Culture, Kinship and Genes: Towards
Cross-Cultural Genetics. St. Martin's, New York, pp 83-96
Davis
H, Fallowfield L (1991) Counselling and Communication in Health
Care. Wiley, Chichester
Davison
C, Macintyre S, Smith GD (1994) The potential social impact of
predictive genetic testing for susceptibility to common chronic
diseases: A review
and proposed research agenda. Sociology of Health and Illness 16:
340-371
Davison
C (1996) Predictive genetics:
The cultural implications of supplying probable futures.
In: Marteau T, Richards M (eds) The Troubled Helix:
Social and Psychological Implications of the New Human
Genetics. Cambridge University Press, Cambridge UK, pp 317-330
Decruyenaere
M, Evers-Kiebooms G, Welkenhuysen M, Bande-Knops J, Van Gerven V,
Van den Berghe H (1995) Adolescents' opinions about genetic risk
information, prenatal diagnosis, and pregnancy termination. J Med
Genet 32: 799-804
Denayer
L, Evers-Kiebooms G, Van den Berghe H (1990) A child with cystic
fibrosis: I. Parental
knowledge about the genetic transmission of CF and about
DNA-diagnostic procedures. Clin Genet 37: 198-206
Denayer
L, De Boeck K, Evers-Keibooms G, Van de Berghe H (1992) The
transfer of information about genetic transmission to brothers and
sisters of parents with a CF child. Birth Defects 28: 149-158
Denayer
L, Evers-Kiebooms G, De Boeck K, Van den Berghe H (1992)
Reproductive decision making of aunts and uncles of a child with
cystic fibrosis: Genetic
risk perception and attitudes toward carrier identification and
prenatal diagnosis. Am J Med Genet 44: 104-111
Denayer
L, Welkenhuysen M, Evers-Kiebooms G, Cassiman J-J, Van den Berghe
H (1997) Risk perception after CF carrier testing and impact of
the test result on reproductive decision making. Am J Med Genet
69: 422-428
DeWachter
MAM (1988) Recent development in genetic counselling: Ethical viewpoints. In: Hicks EK, Berg JM (eds) The Genetics
of Mental Retardation: Biomedical,
Psychosocial and Ethical Issues. Kluwer Academic, Dordrecht,
Netherlands, pp 177-184
Dicker
M, Dicker L (1978) Genetic counseling as an occupational
specialty: A
sociological perspective. Soc Biol 25: 272-278
Disclosure
ASoHGSISoF (1998) ASHG Statement:
Professional disclosure of familial genetic information. Am
J Hum Genet 62: 474-483
Dixson
B, Dang V, Cleveland JO, Peterson RM (1992) An educational program
to overcome language and cultural barriers to genetic services. J
Genet Counsel 1: 267-274
Djurdjinovic
L (1997) Generations lost: A
psychological discussion of a cancer genetics case report. J Genet
Counsel 6: 177-180
Djurdjinovic
L (1998) Psychosocial counseling. In: Baker DL, Schuette JL,
Uhlmann WR (eds) A Guide to Genetic Counseling. Wiley-Liss, New
York, pp 127-166
Dobzhansky
T (1937) Genetics and the Origin of Species. Columbia University
Press, New York
Doyle
DL (1995/6) On the horizon: A
CPT code specific to genetic counseling? Perspectives in Genetic
Counseling 17: 1,5
Doyle
DL (1996) The 1996 professional status survey. Perspectives in
Genetic Counseling 18: 1-8
Driscoll
PT (1986) Early adolescence:
Identity formation. In: Lapham EV, Shevlin KM (eds) The
Impact of Chronic Illness on Psychosocial Stages of Human
Development. Dept. of Social Work, Georgetown University Hospital
and Medical Center, Washington D C, pp 67-75
DudokdeWit
AC, Tibben A, Frets PG, Meijers-Heijboer EJ, Devilee P, Klijn JGM,
Oosterwijk JC, Niermeijer MF (1997) BRCA1 in the family:
A case description of the psychological implications. Am J
Med Genet 71: 63-71
Dunne
C, Warren C (1988) Lethal autonomy:
The malfunction of the informed consent mechanism within
the context of prenatal diagnosis of genetic variants. Issues Law
Med 14: 165-202
Durant
J, Hansen A, Bauer M (1996) Public understanding of the new
genetics. In: Marteau T, Richards M (eds) The Troubled Helix:
Social and Psychological Implications of the New Human
Genetics. Cambridge University Press, Cambridge UK, pp 235-248
Durfy
SJ, Bowen DJ, McTiernan A, Sporleder J, Burke W (1999) Attitudes
and interest in genetic testing for breast and ovarian cancer
susceptibility in diverse groups of women in western Washington.
Cancer Epidemiology, Biomarkers and Prevention 8: 369-375
Duster
T (1990) Backdoor to Eugenics. Routledge, New York
Duster
T (1999) The social consequences of genetic disclosure. In: Carson
RA, Rothstein MA (eds) Behavioral Genetics:
The Clash of Culture and Biology. Johns Hopkins University
Press, Baltimore, pp 172-188
Duvall
EM (1977) Marriage and Family Development, 5th edn. Lippincott,
Philadelphia
Eisenberg
DM, Davis RB, Ettner SL, Appel S, Wilkey S, Van Rompay M, Kessler
RC (1998) Trends in alternative medicine use in the United States,
1990-1997: Results of
a follow-up national survey. JAMA 280: 1569-1575
Eisenbruch
M (1984) Cross-cultural aspects of bereavement:
I. A conceptual framework for comparative analysis. Cult
Med Psychiatry 8:
283-30
Eisenbruch
M (1984) Cross-cultural aspects of bereavement:
II. Ethnic and cultural variations in the development of
bereavement practices. Culture, Medicine and Psychiatry 8: 315-347
Ekwo
EE, Kim J-O, Gosselink CA (1987) Parental perceptions of the
burden of genetic disease. Am J Med Genet 28: 955-963
Elson M
(1987) The Kohut Seminars on Self Psychology and Psychotherapy
with Adolescents and Young Adults. W.W. Norton, New York
Elwyn
G, Gray J, Clarke A (2000) Shared decision making and non-directiveness
in genetic counselling. J Med Genet 37: 135-138
Emery
AEH, Watt MS, Clack ER (1972) The effects of genetic counseling in
Duchenne muscular dystrophy. Clin Genet 3: 147-150
Emery
AEH, Raeburn JA, Skinner R, Holloway S, Lewis P (1979) Prospective
study of genetic counseling. BMJ 1: 1253-1256
Emery
AEH, Pullen I (1984) Psychological Aspects of Genetic Counseling
London Academic
Press
Emery
J, Kumar S, Smith H (1998) Patient understanding of genetic
principles and their expectations of genetic services wtihin the
NHS: A qualitative study. Community Genet 1: 78-83
Emler N
(1993) The young person's relationship to the institutional order.
In: Jackson S, Rodriguez-Tomé H (eds) Adolescence and Its Social
Worlds. Lawrence Erlbaum, Hove UK, pp 229-250
Epstein
CJ (1997) 1996 ASHG Presidential address: Toward the 21st century.
Am J Hum Genet 60: 1-9
Erikson
EH (1963) Childhood and Society, 2nd edn. W W Norton, New York
Eunpu
DL (1995) The impact of infertility and treatment guidelines for
couples therapy. American Journal of Family Therapy 23: 115-128
Eunpu
DL (1997) Systemically-based psychotherapeutic techniques in
genetic counseling. J Genet Counsel 6: 1-20
Eunpu
DL (1997) Generations lost: A
cancer genetics case report commentary. J Genet Counsel 6: 173-176
Evans
MI, Pryde PG, Evans WJ, Johnson MP (1993) The choices women make
about prenatal diagnosis. Fetal Diagn Ther 8: 70-8
Evans
DGR, Blair V, Greenhalgh R, Hopwood P, Howell A (1994) The impact
of genetic counselling on risk perception in women with a family
history of breast cancer. Br J Cancer 70: 934-938
Evers-Kiebooms
G, van den Berghe H (1979) Impact of genetic counseling:
A review of published follow-up studies. Clin Genet 15:
465-474
Evers-Kiebooms
G, Cassiman J-J, Van den Berghe H, d'Ydewalle G (1987) Genetic
Risk, Risk Perception and Decision Making. Birth Defects 23
Evers-Kiebooms
G (1987) Decision making in Huntington's disease and cystic
fibrosis. Birth Defects 23: 115-149
Evers-Kiebooms
G, Denayer L, Van den Berghe H (1990) A child with cystic
fibrosis: II.
Subsequent family planning decisions, reproduction and use of
prenatal diagnosis. Clin Genet 37: 207-215
Evers-Kiebooms
G, Fryns J-P, Cassiman J-J, Van den Berghe H (1992) Psychosocial
Aspects of Genetic Counseling. 28
Evers-Kiebooms
G, Denayer L, Welkenhuysen M, Cassiman J-J, Van den Berghe H
(1994) A stigmatizing effect of the carrier status for cystic
fibrosis? Clin Genet 46: 336-343
Evers-Kiebooms
G (1995) Risk communication in genetic counseling and genetic risk
perception. European Review of Applied Psychology 45: 23-27
Evers-Kiebooms
G, Decruyenaere M, Welkenhuysen M (1995) Reply to the commentary
on Decruyenaer et al "Adolescent's opinions about risk
information, prental diagnosis, and pregnancy termination". J
Med Genet 32: 836
Fadiman
A (1997) The Spirit Catches You and You Fall Down:
A Hmong Child, Her American Doctors, and the Collision of
Two Cultures. Farrar, Straus & Giroux, New York
Fairchild
AL, Bayer R (1999) Uses and abuses of Tuskegee. Science 284:
919-921
Falek A
(1984) Sequential aspects of coping and other issues in decision
making in genetic counseling. In: Emery AEH, Pullen IM (eds)
Psychological Aspects of Genetic Counseling. Academic Press,
London, pp 23-36
Falicov
CJ (1998) Latino Families in Therapy:
A Guide to Multicultural Practice. Guilford, New York
Fanos
JH, Nickerson BG (1991) Long-term effects of sibling death during
adolescence. Journal of Adolescent Research 6: 70-82
Fanos
JH, Johnson JP (1995) Perception of carrier status by cystic
fibrosis siblings. Am J Hum Genet 57: 431-438
Fanos
JH, Johnson JP (1995) Barriers to carrier testing for adult cystic
fibrosis sibs: The
importance of not knowing. Am J Med Genet 59: 85-91
Fanos
JH (1996) Sibling Loss. Lawrence Erlbaum, Mahwah NJ
Fanos
JH (1997) Developmental tasks of childhood and adolescence: Implications for genetic testing. Am J Med Genet 71: 22-28
Fanos
JH (1999) "My crooked vision":
The well sib views ataxia-telangiectasia. Am J Med Genet
87: 420-425
Fanos
JH (1999) The missing link in linkage analysis:
The well sibling revisited. Genet Test 3: 273-278
Fanos
JH, Mackintosh M (1999) "Never again joy without
sorrow": The
impact on the parents of a child with ataxia-telangiectasia. Am J
Med Genet 87: 413-419
Fanos
JH, Gatti RA (1999) A mark on the arm:
Myths of carrier status in sibs of individuals with ataxia-telangiectasia.
Am J Med Genet 86: 338-346
Faust
S, Dricky R (1986) Working with interpreters. J Fam Pract 22:
131-138
Featherstone
H (1980) A Difference in the Family:
Life with a Disabled Child. Basic Books, New York
Fewell
RR (1991) Parenting moderately handicapped children. In: Seligman
M (ed) The Family with a Handicapped Child, 2nd edn. Allyn and
Bacon, Boston, pp 203-236
Fine
BA, Gettig E, Greendale K, Leopold B, Paul NW (1990) Strategies in
Genetic Counseling: Reproductive
Genetics & New Technologies. Birth Defects 26
Fine BA
(1993) The evolution of nondirectiveness in genetic counseling and
implications of the human genome project. In: Bartels DM, LeRoy
BS, Caplan AL (eds) Prescribing Our Future:
Ethical Challenges in Genetic Counseling. Aldine de Gruyter,
New York, pp 101-117
Fineman
RM, Meier G, Nye G, Vetrano MA (1987) The religious influences on
the genetic counseling process:
A round table discussion. Birth Defects 23: 154-161
Finucane
B (1998) Acculturation in women with mental retardation and its
impact on genetic counseling. J Genet Counsel 7: 31-47
Finucane
B (1998) Working with Women Who Have Mental Retardation:
A Genetic Counselor's Guide. Elwyn, Inc,, Elwyn PA
Fisher
NL (1992) Ethnocultural approaches to genetics. Pediatr Clin North
Am 39: 55-64
Fisher
NL (1996) Cultural and Ethnic Diversity:
A Guide for Genetics Professionals
Baltimore Johns
Hopkins University Press
Fisher
NL (1996) Introduction. In: Fisher NL (ed) Cultural and Ethnic
Diversity: A Guide
for Genetics Professionals. Johns Hopkins University Press,
Baltimore, pp xiii-xxi
Fitzgerald
J (1998) Geneticizing disability:
The human genome project and the commodification of self.
Issues Law Med 14:
147-163
Fitzpatrick
C, Barry C (1986) Communication within families about Duchenne
muscular dystrophy. Dev Med Child Neurol 28: 596-599
Fletcher
JC (1984) Ethical and social aspects of risk predictions. Clin
Genet 25: 25-31
Flores
G, Abreu M, Schwartz I, Hill M (2000) The importance of language
and culture in pediatric care:
Case studies from the Latino community. J Pediatr 137:
842-848
Folkman
S, Lazarus RS, Dunkel-Schetter C, DeLongis A, Gruen RJ (1986)
Dynamics of a stressful encounter:
Cognitive apraisal, coping, and encounter outcomes. Journal
of Peronality and Social Psychology 50: 992-1003
Folwarski
J, Marganoff PP (1996) Polish families. In: McGoldrick M, Giordano
J, Pearce JK (eds) Ethnicity and Family Therapy, 2nd edn.
Guilford, London, pp 658-672
Fonda
Allen JS, Mulhauser LC (1995) Genetic counseling after abnormal
prenatal diagnosis: Facilitating
coping in familes who continue their pregnancies. J Genet Counsel
4: 251-266
Foster
MW, Sharp RR, Freeman WL, Chino M, Bernsten D, Carter TH (1999)
The role of community review in evaluating the risks of human
genetic variation research. Am J Hum Genet 64: 1719-1727
Fox S,
Bloch M, Fahy M, Hayden MR (1989) Predictive testing for
Huntington disease: I.
Description of a pilot project in British Columbia. Am J Med Genet
32: 211-216
Franks
L (1999) Miracle Kid. The New Yorker May 17: 68-77
Fraser
FC (1977) Degree of directiveness. In: Lubs HA, de la Cruz F (eds)
Genetic Counseling. Raven Press, New York, pp 579-581
Freeman
EW, Boxer AS, Rickels K, Tureck R, Mastroianni L (1985)
Psychological evaluation and support in a program of in vitro
fertilization and embryo transfer. Fertil and Steril 43: 48-53
Freimuth
VS, Quinn SC, Thomas SB, Cole G, Zook E, Duncan T (2001) African
Americans' views on research and the Tuskegee syphilis study. Soc
Sci Med 52: 797-808
Frets
PG, Duivenvoorden HJ, Verhage F, Niermeijer MF, van den Berghe SMM,
Galjaard H (1990) Factors influencing the reproductive decision
after genetic counseling. Am J Med Genet 35: 496-502
Frets
PH, Niermeijer MF (1990) Reproductive planning after genetic
counseling: A
perspective from the last decade. Clin Genet 38: 295-306
Frets
PG, Duivenvoorden JH, Verhage F, Ketzer E, Niermeijer MF (1990)
Model identifying the reproductive decision after genetic
counseling. Am J Med Genet 35: 503-509
Frets
PG, Duivenvoorden HJ, Verhage F, Peters-Romeyn BMT, Nierjeijer MF
(1991) Analysis of problems in making the reproductive decision
after genetic counseling. J Med Genet 28: 194-200
Friedman
EH (1982) The myth of the shiksa. In: McGoldrick M, Pearce JK,
Giordano J (eds) Ethnicity and Family Therapy. Guilford, New York,
pp 499-526
Friedman
LC, Webb JA, Richards CS, Lynch GR, Kaplan AL, Brunicardi FC, Plon
SE (1999) Psychological impact of receiving negative BRCA1
mutation test results in Ashkenazim. Genetics in Medicine 1: 74-79
Fuller-Thomson
E, Minkler M, Driver D (1997) A profile of grandparents raising
grandchildren in the United States. The Gerontologist 37: 406-411
Gabbard
GO (1995) Theories of personality and psychopathology: Psychoanalysis. In: Kaplan HI, Sadock BJ (eds) Comprehensive
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GH, Jr (1996) Religion in America 1996. Princeton Religion
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Garrison
WT, McQuiston S (1989) Chronic Illness During Childhood and
Adolescence: Psychological
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TD, Collins FS, Ginsburg D (1998) Principles of Medical Genetics,
2nd edn. Williams & Wilkins, Baltimore
Geller
G, Strauss M, Bernhardt BA, Holtzman NA (1997)
"Decoding" informed consent:
Insights from women regarding breast cancer susceptibility
testing. Hastings Cent Rep 27: 28-33
Genetics
ISoNi (1998) Statement on the Scope and Standards of Genetics
Clinical Nursing Practice. American Nurses Publishing, Washington
Gervais
KG (1993) Objectivity, value neutrality, and nondirectiveness in
genetic counseling. In: Bartels DM, LeRoy BS, Caplan AL (eds)
Prescribing Our Future: Ethical
Challenges in Genetic Counseling. Aldine de Gruyter, New York, pp
119-130
Gettig
E, Hannig V, Westphal-Fitzgerald J (1987) Rural genetic
counseling: Working
in the field. Birth Defects 23: 214-225
Giardiello
FM, Brensinger JD, Petersen GM, Luce MC, Hylind LM, Bacon JA,
Booker SV, Parker RD, Hamilton SR (1997) The use and
interpretation of commercial APC gene testing for familial
adenomatous polyposis. NEJM 336: 823-827
Goffman
E (1963) Stigma: Notes
on the Management of Spoiled Identity. Prentice-Hall, Englewood,
NJ
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MS, Conte FA, Schneider EL, Epstein CJ (1974) Intrauterine
diagnosis of genetic defects:
Results, problems, and follow-up of one hundred cases in a
prenatal genetic detection center. Am J Obstet Gynecol 118:
897-905
Goldstein
MA, Biesecker BB (1993) Introduction to 1992 Asilomar Conference
papers. J Genet Counsel 2: 153-154
Goodman
JF, Abrams EZ (1988) Giving bad news to parents. In: Ball S (ed)
Strategies in Genetic Counseling:
The Challenge of the Future, vol I. Human Sciences, New
York, pp 136-154
Greb A
(1998) Multiculturalism and the practice of genetic counseling.
In: Baker DL, Schuette JL, Uhlmann WR (eds) A Guide to Genetic
Counseling. Wiley-Liss, New York, pp 171-198
Green R
(1992) Letter to a genetic counselor. J Genet Counsel 1: 55-70
Green
J, Murton F, Statham H (1993) Psychosocial issues raised by a
familial ovarian cancer register. J Med Genet 30: 575-579
Green
JM (1995) Comment. J Med Genet 32
Green
J, Statham H (1996) Psychosocial aspects of prenatal screening and
diagnosis. In: Marteau T, Richards M (eds) The Troubled Helix:
Social and Psychological Implications of the New Human
Genetics. Cambridge University Press, Cambridge UK, pp 140-163
Green
J, Richards M, Murton F, Statham H, Hallowell N (1997) Family
communication and genetic counseling:
The case of hereditary breast and ovarian cancer. J Genet
Counsel 6: 45-60
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R-J (1998) Race and the field of family therapy. In: McGoldrick M
(ed) Re-visioning Family Therapy:
Race, Culture, and Gender in Clinical Practice. Guilford,
New York, pp 93-110
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K (1992) Role of non-physician health-care providers in
incorporating genetic services into community medicine. Birth
Defects 28: 103-114
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PM (1997) You can't take it with you:
Why ability assessments don't cross cultures. American
Psychologist 52: 1115-1124
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SI (1991) The Clinical Interview of the Child, 2nd edn. American
Psychiatric Press, Washington, DC
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M, Kavanaugh C, Sorenson J (1977) Genetic information, client
perspective and genetic counseling. Soc Work Health Care 2:
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R (1979) Amniocentesis counseling. In: Kessler S (ed) Genetic
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Treatment of Marital Conflict:
A Four-Stage Approach. Basic Books, New York
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AS, Messer SB (1995) Essential Psychotherapies:
Theory and Practice
New York Guilford
(Updated
12/9/05)
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