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Bibliographic Database on Psychosocial Genetic Counseling - A-Z
Dr. Weil compiled this database in the process of writing Psychosocial Genetic Counseling, Oxford University Press, 2000. With a few exceptions, compilation was completed in December 2000, and it has not been updated since then.

Ablon J (1984) Little People in America:  The Social Dimensions of Dwarfism. Praeger, New York

Ablon J (1988) Living with Difference:  Families with Dwarf Children. Praeger, New York

Abromovsky I, Godmilow L, Hirschorn K, Smith H (1980) Analysis of a follow-up study of genetic counseling. Clin Genet 17: 1-12

Akamatsu NN (1998) The talking oppression blues:  Including the experience of power/powerlessness in the teaching of "cultural sensitivity". In: McGoldrick M (ed) Re-visioning Family Therapy:  Race, Culture, and Gender in Clinical Practice. Guilford, New York, pp 129-143

American Society of Human Genetics Social Issues Committee and American College of Medical Genetics Social E, and Legal Issues Committee (2000) ASHG/ACMG statement:  Genetic testing in adoption. Am J Hum Genet 66: 761-767

Anderson ML, Collins PH (1995) Race, Class, and Gender   Belmont  Wadsworth

Antley RM (1976) Variables in the outcome of genetic counseling. Soc Biol 23: 108-115

Antley RM (1979) Genetic counseling for parents of a baby with Down's syndrome. In: Kessler S (ed) Genetic Counseling:  Psychological Dimensions. Academic Press, New York, pp 115-133

Applebaum EG, Firestein SK (1983) A Genetic Counseling Casebook. Free Press, New York

Arnold JR, Winsor EJT (1984) The use of structured scenarios in genetic counselling. Clin Genet 25: 485-490

Arnos KS (1990) Special considerations in genetic counseling with the deaf population. Birth Defects 26: 199-202

Asch A (1989) Reproductive technology and disability. In: Cohen S, Taub N (eds) Reproductive Laws for the 1990s. Humana, Clifton NJ, pp 69-124

Ayme S, Macquart-Moulin G, Julian-Reynier C, Chabal F, Giraud F (1993) Diffusion of information about genetic risk within families. Neuromuscul Disord 3: 571-574

Baird MA, Doherty WJ (1986) Family resources in coping with serious illness. In: Karpel MA (ed) Family Resources:  The Hidden Partner in Family Therapy. Guilford, New York, pp 359-383

Baker DL, Schuette JL, Uhlmann WR (1998) A Guide to Genetic Counseling   New York  Wiley-Liss

Baker DL (1998) Interviewing techniques. In: Baker DL, Schuette JL, Uhlmann WR (eds) A Guide to Genetic Counseling. Wiley-Liss, New York, pp 55-73

Bartels DM, LeRoy BS, Caplan AL (1993) Prescribing Our Future:  Ethical Challenges in Genetic Counseling   New York  Aldine de Gruyter

Bartels DM, LeRoy BS, McCarthy P, Caplan AL (1997) Nondirectiveness in genetic counseling:  A survey of practitioners. Am J Med Genet 72: 172-179

Basch MF (1980) Doing Psychotherpay. Basic Books, New York

Batts VA (1990) An experiential workshop:  Introduction to multiculturalism. In: Stricker G, Davis-Russell E, Bourg E, Duran E, Hammond WR, McHolland J, Polite K, Vaught BE (eds) Toward Ethnic Diversification in Psychology Education and Training. American Psychological Association, Washington, pp 9-16

Baty BJ, Venne VL, McDonald J, Croyle RT, Halls C, Nash JE, Botkin JR (1997) BRCA1 testing:  Genetic counseling protocol development and counseling issues. J Genet Counsel 6: 223-244

Baumeister RF (1993) Self-esteem:  The Puzzle of Low Self-regard   New York  Plenum

Baumeister RF (1993) Understanding the inner nature of low self-esteem:  Uncertain, fragile, protective, and conflicted. In: Baumeister RF (ed) Self-esteem:  The Puzzle of Low Self-regard. Plenum, New York, pp 201-218

Baumeister RF, Stillwell AM, Heatherton TF (1994) Guilt:  An interpersonal approach. Psychol Bull 115: 243-267

Baumiller RC, Cunningham G, Fisher N, Fox L, Henderson M, Lebel R, McGrath G, Pelias MZ, Porter I, Seydel F, Wilson NR (1996) Code of ethical principles for genetics professionals:  An explication. Am J Med Genet 65: 179-183

Beeson D, Golbus MS (1979) Anxiety engendered by amniocentesis. Birth Defects 15: 191-197

Beeson D (1984) Technological rhythms in pregnancy:  The case of prenatal diagnosis by amniocentesis. In: Duster T, Garret K (eds) Cultural Perspectives on Biological Knowledge. Ablex, Norwood NJ

Beeson D, Golbus MS (1985) Decision making:  Whether or not to have prenatal diagnosis and abortion for X-linked conditions. Am J Med Genet 20: 107-114

Beeson D, Doksum T (1995) Family values and resistance to genetic testing.

Beeson D, Doksum T (2001) Family values and resistance to genetic counseling. In: Hoffmaster B (ed) Bioethics in Context. Cambridge University Press, Cambridge UK, pp 153-179

Benjamin C, Colley A, Donnai D, Kingston H, Harris R, Kerzine-Storrar L (1993) Neurofibromatosis type1 (NF1):  Knowledge, experience, and reproductive decisions of affected patients and families. J Med Genet 30: 567-574

Benkendorf JL (1987) Grieving and believing:  Helping parents through imperfect beginnings. Birth Defects 23: 25-35

Bennet RL, Bird TD, Teri L (1993) Offering predictive testing for Huntington disease in a medical genetics clinic:  Practical applications. J Genet Counsel 2: 123-137

Bennett RL (1999) The Practical Guide to the Genetic Family History. Wiley-Liss, New York

Berkenstadt M, Shiloh S, Barkai G, Katznelson MB-M, Goldman B (1999) Perceived personal control (PPC):  A new concept in measuring outcome of genetic counseling. Am J Med Genet 82: 53-59

Bernhardt BA (1997) Emperical evidence that genetic counseling is directive:  Where do we go from here? Am J Hum Genet 60: 17-20

Bernhardt BA, Geller G, Strauss M, Helzlsouer KJ, Stefanek M, Wilcox PM, Holtzman NA (1997) Toward a model informed consent process for BRCA1 testing:   A qualitative assessment of women's attitudes. J Genet Counsel 6: 207-222

Berry JW (1997) Immigration, acculturation, and adaptation. Applied Psychology: An International Review 46: 5-34

Bérubé M (1996) Life As We Know It. Vintage Books, New York

Bibring GL (1959) Some considerations of the psychological processes in pregnancy. Psychoanal Study Child 14: 113-212

Bibring GL, Dwyer TF, Huntington DS, Valenstein AF (1961) A study of the psychological processes in pregnancy and of the earliest mother-child relationship:  I. Some propositions and comments. Psychoanal Study Child 16: 9-72

Biesecker B, Magyari PA, Paul NW (1987) Strategies in genetic counseling:  II. Religious, cultural and ethnic influences on the counseling process. Birth Defects 23

Biesecker BB, Chen L, Israel J, Fine B, Mittman I (1996) Seeking common ground:  Dialogue between disability rights & genetics. Perspectives in Genetic Counseling 18: 1, 8

Biesecker BB, Marteau TM (1999) The future of genetic counselling:  An international perspective. Nat Genet 22: 133-137

Bighorn S, Bighorn R (1990) Provision of services at the Fort Peck Indian Reservation. Birth Defects 26: 117-120

Birenbaum LK (1970) J Health Soc Behav 12: 55-

Black RB (1979) The effects of diagnostic uncertainty and available options on perceptions of risk. Birth Defects 15: 341-354

Black RB (1981) Risk taking behavior:  Decision making in the face of genetic uncertainty. Soc Work Health Care 7: 11-25

Black RB (1991) Women's voices after pregnancy loss:  Couples' patterns of communication and support. Soc Work Health Care 16: 19-36

Black RB (1993) Psychosocial issues in reproductive genetic testing and pregnancy loss. Fetal Diagn Ther 8: 164-173

Black L (1996) Families of African origin:  An overview. In: McGoldrick M, Giordano J, Pearce JK (eds) Ethnicity and Family Therapy, 2nd edn. Guilford, New York, pp 57-84

Blanck G, Blanck R (1979) Ego Psychology II:  Psychoanalytic Developmental Psychology. Columbia University Press, New York

Bleiker EMA, Aaronson NK, Menko FH, Hanh DEE, van Asperen CJ, Rutgers EJT, ten Kate LP, Leschot NJ (1997) Genetic counseling for hereditary cancer:  A pilot study on experiences of patients and family members. Patient Education and Counseling 32: 107-116

Bloch EV, DiSalvo M, Hall BD, Epstein CJ (1979) Alternative ways of presenting empiric risks. Birth Defects 15: 233-244

Bloch M, Adam S, Wiggins S, Huggins M, Hayden MR (1992) Predictive testing for Huntington disease in Canada:  The experience of those receiving an increased risk. Am J Med Genet 42: 499-507

Bloom B-A (1987) Support for families with unsuccessful pregnancies. Birth Defects 23: 45-51

Bluebond-Langner M (1978) The Private Worlds of Dying Children   Princeton NJ  Princeton University Press

Blumberg B (1984) The emotional implications of prenatal diagnosis. In: Emery AEH, Pullen IM (eds) Psychological Aspects of Genetic Counseling. Academic Press, London, pp 201-217

Blumenthal D, Heimler A, Edelman C, Engleberg J, Feldman BD, Sitron N (1990) A protocol for genetic counseling following abnormal prenatal diagnosis. Birth Defects 26: 157-160

Bohart AC (1995) The person-centered psychotherapies. In: Gurman AS, Messer SB (eds) Essential Psychotherapies:  Theory and Practice. Guilford, New York, pp 85-127

Bosco AF (2000) Caring for the care-giver:  The benefit of a peer supervision group. J Genet Counsel 9: 425-430

Bosk C (1993) All God's Mistakes. Chicago Press, Chicago

Bosk C (1993) The workplace ideology of genetic counselors. In: Bartels DM, LeRoy BS, Caplan AL (eds) Prescribing Our Future:  Ethical Challenges in Genetic Counseling. Aldine de Gruyter, New York, pp 25-37

Bottorff JL, Ratner PA, Johnson JL, Lovato CY, Joab SA (1998) Communicating cancer risk information;  The challenges of uncertainty. Patient Education and Counseling 33: 67-81

Bouvier LF, Gardner R (1986) Immigration to the U.S.:  The unfinished story. Population Bull 41: 5-8

Bowman JE (1977) Genetic screening programs and public policy. Phylon 38: 117-142

Bowman JE (1991) Invited editorial:  Prenatal screening for hemoglobinopathies. Am J Hum Genet 48: 433-438

Boyd-Franklin N (1989) Black Families in Therapy:  A Multisystems Approach. Guilford, New York

Bradby H (1996) Genetics and racism. In: Marteau T, Richards M (eds) The Troubled Helix:  Social and Psychological Implications of the New Human Genetics. Cambridge University Press, Cambridge UK, pp 295-316

Brandt AM (1978) Racism and research:  The case of the Tuskegee syphilis study. Hastings Cent Rep 8: 21-29

Brenneman G (1997) Chronic and disabling conditions among American Indian and Alaskan native children and youth. Fam Syst Health 15: 263-274

Brensinger JD, Laxova R (1995) The Amish:  Perceptions of genetic disorders and services. J Genet Counsel 4: 27-48

Bridge M, Iden S, Cunniff C, Meaney FJ (1998) Improving access to and utilization of genetic services in Arizona's Hispanic population. Community Genet 1: 166-168

Bringle RG, Antley RM (1980) Elaboration of the definition of genetic counseling into a model for counselee decision-making. Soc Biol 27: 304-318

Brookshire G (1999) Book review. J Genet Counsel 8: 127-128

Brown FH (1989) The impact of death and serious illness on the family life cycle. In: Carter B, McGoldrick M (eds) The Changing Family Life Cycle:  A Framework for Family Therapy, 2nd edn. Allyn and Bacon, Boston, pp 457-482

Brown JH, Christensen DN (1999) Family Therapy:  Theory and Practice, 2nd edn. Brooks/Cole, Pacific Grove CA

Browner CH, Press NA (1995) The normalization of prenatal diagnostic screening. In: Ginsburg FD, Rapp R (eds) Conceiving the New World Order:  The Global Politics of Reproduction. University of California Press, Berkeley, pp 307-322

Browner CH, Preloran HM (1999) Male partners' role in Latinas' amniocentesis decisions. J Genet Counsel 8: 85-108

Brunger F, Lippman A (1995) Resistance and adherence to the norms of genetic counseling. J Genet Counsel 4: 151-168

Buckman R (1992) How to Break Bad News:  A Guide for Health Care Professionals. Johns Hopkins University Press, Baltimore

Bukatko D, Daehler MW (1992) Child Development:  A Topical Approach. Houghton Mifflin, Boston

Burke BM (1992) Genetic counselor attitudes towards fetal sex identification and selective abortion. Soc Sci Med 34: 1263-1269

Burke BM, Kolker A (1994) Variation in content in prenatal genetic counseling interviews. J Genet Counsel 3: 23-38

Burke BM, Kolker A (1994) Directiveness in prenatal genetic counseling. Women Health 22: 31-53

Butani P (1974) Reactions of mothers to the birth of an anomalous infant:  A review of the literature. Matern Child Nurs J 3: 59-76

Byng-Hall J (1995) Rewriting Family Scripts:  Improvisation and Systems Change. Guilford, New York

Callanan NP, Bloom D, Sorenson JR, DeVellis BM, Cheuvront B (1995) CF carrier testing:  Experience of relatives. J Genet Counsel 4: 83-95

Cameron N (1963) Personality Development and Psychopathology:  A Dynamic Approach. Houghton Mifflin, Boston

Campbell JD (1990) Self-esteem and clarity of the self-concept. J Pers Soc Psychol 59: 538-549

Caplan A (1979) Genetic counseling, medical genetics and theoretical genetics:  An historical overview. Birth Defects 15: 21-31

Caplan AL (1993) Neutrality is not morality:  The ethics of genetic counseling. In: Bartels DM, LeRoy BS, Caplan AL (eds) Prescribing Our Future:  Ethical Challenges in Genetic Counseling. Aldine de Gruyter, New York, pp 149-165

Caplan AL, Kolker A, Merideth Burke B (1994) Preface. Prenatal Testing:  A Sociological Perspective. Bergin & Garvey, Westport CT

Cappelli M, McGrath PJ, Heick CE, MacDonald NE, Feldman W, Rowe P (1989) Chronic disease and its impact:  The adolescent's perspective. J Adolesc Health Care 10: 283-288

Capron AM, Lappe M, Murray RF, Polwedge TM, Twiss SB, Bergsma D (1979) Genetic Counseling:  Facts, Values and Norms. Birth Defects 15

Carrese JA, Rhodes LA (1995) Western bioethics on the Navajo Reservation:   Benefit or harm? JAMA 274: 826-829

Carter CO, Roberts JAF, Evans KA, Buck AR (1971) Genetic clinic:  A follow-up. Lancet 1: 281-285

Carter B, McGoldrick M (1989) The changing family life cycle:  a framework for family therapy. In: Carter B, McGoldrick M (eds) The Changing Family Life Cycle:  A Framework for Family Therapy, 2nd edn. Ilyn and Bacon, Boston, pp 3-28

Carter RT (1991) Cultural values:  A review of empirical research and implications for counseling. Journal of Counseling and Development 70: 164-173

Carter RT, Qureshi A (1995) A typology of philosophical assumptions in multicultural counseling and training. In: Ponterotto JG, Casas JM, Suzuki LA, Alexander CM (eds) Handbook of Multicultural Counseling. SAGE, Thousand Oaks, pp 239-262

Census USBot (1992) Population Projections of the United States by Age, Race, Sex and Hispanic Origin 1992-2050. U.S. Government Printing Office, Washington DC

Census USBot (1998) Current Population Reports, Series P23-194, Population Profile of the United States:  1997. U.S. Government Printing Office, Washington DC

Chalmers K, Thomson K (1996) Coming to terms with the risk of breast cancer:  Perceptions of women with primary relatives with breast cancer. Qualitative Health Research 6: 256-282

Chan S (1992) Families with Asian roots. In: Lynch E, M H (eds) Developing Cross-Cultural Competence:  A Guide for Working with Young Children and Their Familes. Paul H Brookes, Baltimore

Chapple A, May C, Campion P (1995) Lay understanding of genetic disease:  A British study of families attending a genetic counseling service. J Genet Counsel 4: 281-300

Chapple A, May C, Campion P (1995) Parental guilt:  The part played by the clinical geneticist. J Genet Counsel 4: 179-192

Chapple A, Campion P, May C (1997) Clinical terminology:  Anxiety and confusion amongst families undergoing genetic counseling. Patient Education and Counseling 32: 81-91

Chase GA, Faden RR, Holtzman NA, Chwalow AJ, Leonard CO, Lopes C, Quaid K (1986) Assessment of risk by pregnant women:  Implications for genetic counseling. Soc Biol 33: 57-64

Chethik M (1989) Techniques of Child Therapy:  Psychodynamic Strategies. Guilford, New York

Chodoff P, Friedman SB, Hamburg DA (1964) Stress, defenses and coping behavior:  Observations in parents of children with malignant disease. Am J Psychiatry 120: 743-749

Clark SL, DeVore GR (1989) Prenatal diagnosis for couples who would not consider abortion. Prenat Diagn 73: 1035-1037

Clarke A (1991) Is non-directive genetic counseling possible? Lancet 338: 998-1001

Clarke A (1994) Genetic Counseling:  Practice and Principles   London  Routledge

Clarke AJ (1997) The process of genetic counseling:  Beyond non-directiveness. In: Harper PS, Clarke AJ (eds) Genetics, Society, and Clinical Practice. Bios Scientific, Oxford, pp 179-200

Coates D, Winston T (1983) Counteracting the deviance of depression:  Peer support groups for victims. Journal of Social Issues 39: 169-194

Cochran JW, Langston D, Woodward C (1988) Changing Our Power:  An Introduction to Women's Studies   Dubuque IO  Kendall-Hunt

Cohen S, SYme SL (1985) Social Support and Health   Orlando FL  Academic Press

Cohen LH, Fine BA, Pergament E (1998) An assessment of ethnocultural beliefs regarding the causes of birth defects and genetic disorders. J Genet Counsel 7: 15-29

Coleman J (1993) Adolescence in a changing world. In: Jackson S, Rodriguez-Tomé H (eds) Adolescence and its Social Worlds. Lawrence Erlbaum, Hove UK, pp 251-268

Comas-Diaz L, Jacobsen FM (1991) Ethnocultural transference and countertransference in the therapeutic dyad. Am J Orthopsychiatry 61: 392-402

Condit CM, Ofulue N, Sheedy KM (1998) Determinism and mass-media portrayals of genetics. Am J Hum Genet 62: 979-984

Cook JA (1984) Influence of gender on the problems of parents of fatally ill children. Journal of Psychosocial Oncology 2: 71-91

Copley TT, Wiggins S, Dufrasne S, Bloch M, Adam S, McKellin W, Hayden MR (1995) Are we all of one mind?  Clinicians' and patients' opinions regarding the development of a service protocol for predictive testing for Huntington disease. Am J Med Genet 58: 59-69

Costello A (1987) Psychosocial management of patients in a fetal medicine and surgery program. Birth Defects 23: 62-74

Counseling AHCoG (1975) Genetic counseling. Am J Hum Genet 27: 240-242

Counselors NSoG (1992) Code of ethics. J Genet Counsel 1: 41-43

Cowan RS (1993) Aspects of the history of prenatal diagnosis. Fetal Diagn Ther 8: 10-17

Côté GB (1982) Odds in genetic counseling. J Med Genet 19: 455-457

Cramer P (2000) Defense mechanisms in psychology today. American Psychologist 55: 637-646

Crohn J (1997) Asian intermarriage:  Love versus tradition. In: Lee E (ed) Working With Asian Americans:  A Guide for Clinicians. Guilford, New York

Crohn J (1998) Intercultural couples. In: McGoldrick M (ed) Re-visioning Family Therapy:  Race, Culture, and Gender in Clinical Practice. Guilford, New York, pp 295-308

d'Ydewall G, Evers-Kiebooms G (1987) Experiments of genetic risk perception and decision making:  Explorative studies. Birth Defects 23: 209-226

Dallaire L, Lortie G, des Rochers M, Clermont R, Vachon C (1995) Parental reaction and adaptability to the prenatal diagnosis of fetal defect or genetic disease leading to pregnancy interruption. Prenat Diagn 15: 249-259

Daly M, Farmer J, Harrop-Stein C, Montgomery S, Itzen M, Costalas JW, Rogatko A, Miller S, Balshem A, Gillespie D (1999) Exploring family relationships in cancer risk counseling using the genogram. Cancer Epidemiology, Biomarkers and Prevention 8: 393-398

Daneshpour M (1998) Muslim families and family therapy. J Marital Fam Ther 24: 355-390

Daniels R (1971) Concentration Camps USA:  Japanese Americans and World War II. Dryden Press, Hinsdale IL

Darling RB (1979) Families Against Society:  A Study of Reactions to Children with Birth Defects. SAGE, Beverly Hills, CA

Darling RB, Darling J (1982) Children Who Are different:  Meeting the Challenges of Birth Defects in Society. Mosby, St. Louis

Darling RB (1987) The economic and psycho-social consequences of disability:  Family-society relationships. In: Ferrari M, Sussman MB (eds) Childhood Disability and Family Systems. Haworth Press, New York, pp 46-61

Darling RB (1988) Parental entrepreneurship:  A consumerist response to professional dominance. Journal of Social Issues 

Darling RB (1991) Initial and continuing adaptation to the birth of a disabled child. In: Seligman M (ed) The Family with a Handicapped Child, 2nd edn. Allyn and Bacon, Boston, pp 55-90

Darling RB (1991) Parent-professional interaction:  The roots of misunderstanding. In: Seligman M (ed) The Family with a Handicapped Child, 2nd edn. Allyn and Bacon, Boston, pp 119-149

Darr A (1997) Consanguineous marriage and genetics:  A positive relationship. In: Clarke A, Parsons E (eds) Culture, Kinship and Genes:  Towards Cross-Cultural Genetics. St. Martin's, New York, pp 83-96

Davis H, Fallowfield L (1991) Counselling and Communication in Health Care. Wiley, Chichester

Davison C, Macintyre S, Smith GD (1994) The potential social impact of predictive genetic testing for susceptibility to common chronic diseases:  A review and proposed research agenda. Sociology of Health and Illness 16: 340-371

Davison C (1996) Predictive genetics:  The cultural implications of supplying probable futures. In: Marteau T, Richards M (eds) The Troubled Helix:  Social and Psychological Implications of the New Human Genetics. Cambridge University Press, Cambridge UK, pp 317-330

Decruyenaere M, Evers-Kiebooms G, Welkenhuysen M, Bande-Knops J, Van Gerven V, Van den Berghe H (1995) Adolescents' opinions about genetic risk information, prenatal diagnosis, and pregnancy termination. J Med Genet 32: 799-804

Denayer L, Evers-Kiebooms G, Van den Berghe H (1990) A child with cystic fibrosis:  I. Parental knowledge about the genetic transmission of CF and about DNA-diagnostic procedures. Clin Genet 37: 198-206

Denayer L, De Boeck K, Evers-Keibooms G, Van de Berghe H (1992) The transfer of information about genetic transmission to brothers and sisters of parents with a CF child. Birth Defects 28: 149-158

Denayer L, Evers-Kiebooms G, De Boeck K, Van den Berghe H (1992) Reproductive decision making of aunts and uncles of a child with cystic fibrosis:  Genetic risk perception and attitudes toward carrier identification and prenatal diagnosis. Am J Med Genet 44: 104-111

Denayer L, Welkenhuysen M, Evers-Kiebooms G, Cassiman J-J, Van den Berghe H (1997) Risk perception after CF carrier testing and impact of the test result on reproductive decision making. Am J Med Genet 69: 422-428

DeWachter MAM (1988) Recent development in genetic counselling:  Ethical viewpoints. In: Hicks EK, Berg JM (eds) The Genetics of Mental Retardation:  Biomedical, Psychosocial and Ethical Issues. Kluwer Academic, Dordrecht, Netherlands, pp 177-184

Dicker M, Dicker L (1978) Genetic counseling as an occupational specialty:  A sociological perspective. Soc Biol 25: 272-278

Disclosure ASoHGSISoF (1998) ASHG Statement:  Professional disclosure of familial genetic information. Am J Hum Genet 62: 474-483

Dixson B, Dang V, Cleveland JO, Peterson RM (1992) An educational program to overcome language and cultural barriers to genetic services. J Genet Counsel 1: 267-274

Djurdjinovic L (1997) Generations lost:  A psychological discussion of a cancer genetics case report. J Genet Counsel 6: 177-180

Djurdjinovic L (1998) Psychosocial counseling. In: Baker DL, Schuette JL, Uhlmann WR (eds) A Guide to Genetic Counseling. Wiley-Liss, New York, pp 127-166

Dobzhansky T (1937) Genetics and the Origin of Species. Columbia University Press, New York

Doyle DL (1995/6) On the horizon:  A CPT code specific to genetic counseling? Perspectives in Genetic Counseling 17: 1,5

Doyle DL (1996) The 1996 professional status survey. Perspectives in Genetic Counseling 18: 1-8

Driscoll PT (1986) Early adolescence:  Identity formation. In: Lapham EV, Shevlin KM (eds) The Impact of Chronic Illness on Psychosocial Stages of Human Development. Dept. of Social Work, Georgetown University Hospital and Medical Center, Washington D C, pp 67-75

DudokdeWit AC, Tibben A, Frets PG, Meijers-Heijboer EJ, Devilee P, Klijn JGM, Oosterwijk JC, Niermeijer MF (1997) BRCA1 in the family:  A case description of the psychological implications. Am J Med Genet 71: 63-71

Dunne C, Warren C (1988) Lethal autonomy:  The malfunction of the informed consent mechanism within the context of prenatal diagnosis of genetic variants. Issues Law Med 14: 165-202

Durant J, Hansen A, Bauer M (1996) Public understanding of the new genetics. In: Marteau T, Richards M (eds) The Troubled Helix:  Social and Psychological Implications of the New Human Genetics. Cambridge University Press, Cambridge UK, pp 235-248

Durfy SJ, Bowen DJ, McTiernan A, Sporleder J, Burke W (1999) Attitudes and interest in genetic testing for breast and ovarian cancer susceptibility in diverse groups of women in western Washington. Cancer Epidemiology, Biomarkers and Prevention 8: 369-375

Duster T (1990) Backdoor to Eugenics. Routledge, New York

Duster T (1999) The social consequences of genetic disclosure. In: Carson RA, Rothstein MA (eds) Behavioral Genetics:  The Clash of Culture and Biology. Johns Hopkins University Press, Baltimore, pp 172-188

Duvall EM (1977) Marriage and Family Development, 5th edn. Lippincott, Philadelphia

Eisenberg DM, Davis RB, Ettner SL, Appel S, Wilkey S, Van Rompay M, Kessler RC (1998) Trends in alternative medicine use in the United States, 1990-1997:  Results of a follow-up national survey. JAMA 280: 1569-1575

Eisenbruch M (1984) Cross-cultural aspects of bereavement:  I. A conceptual framework for comparative analysis. Cult Med  Psychiatry 8: 283-30

Eisenbruch M (1984) Cross-cultural aspects of bereavement:  II. Ethnic and cultural variations in the development of bereavement practices. Culture, Medicine and Psychiatry 8: 315-347

Ekwo EE, Kim J-O, Gosselink CA (1987) Parental perceptions of the burden of genetic disease. Am J Med Genet 28: 955-963

Elson M (1987) The Kohut Seminars on Self Psychology and Psychotherapy with Adolescents and Young Adults. W.W. Norton, New York

Elwyn G, Gray J, Clarke A (2000) Shared decision making and non-directiveness in genetic counselling. J Med Genet 37: 135-138

Emery AEH, Watt MS, Clack ER (1972) The effects of genetic counseling in Duchenne muscular dystrophy. Clin Genet 3: 147-150

Emery AEH, Raeburn JA, Skinner R, Holloway S, Lewis P (1979) Prospective study of genetic counseling. BMJ 1: 1253-1256

Emery AEH, Pullen I (1984) Psychological Aspects of Genetic Counseling   London  Academic Press

Emery J, Kumar S, Smith H (1998) Patient understanding of genetic principles and their expectations of genetic services wtihin the NHS:  A qualitative study. Community Genet 1: 78-83

Emler N (1993) The young person's relationship to the institutional order. In: Jackson S, Rodriguez-Tomé H (eds) Adolescence and Its Social Worlds. Lawrence Erlbaum, Hove UK, pp 229-250

Epstein CJ (1997) 1996 ASHG Presidential address: Toward the 21st century. Am J Hum Genet 60: 1-9

Erikson EH (1963) Childhood and Society, 2nd edn. W W Norton, New York

Eunpu DL (1995) The impact of infertility and treatment guidelines for couples therapy. American Journal of Family Therapy 23: 115-128

Eunpu DL (1997) Systemically-based psychotherapeutic techniques in genetic counseling. J Genet Counsel 6: 1-20

Eunpu DL (1997) Generations lost:  A cancer genetics case report commentary. J Genet Counsel 6: 173-176

Evans MI, Pryde PG, Evans WJ, Johnson MP (1993) The choices women make about prenatal diagnosis. Fetal Diagn Ther 8: 70-8

Evans DGR, Blair V, Greenhalgh R, Hopwood P, Howell A (1994) The impact of genetic counselling on risk perception in women with a family history of breast cancer. Br J Cancer 70: 934-938

Evers-Kiebooms G, van den Berghe H (1979) Impact of genetic counseling:  A review of published follow-up studies. Clin Genet 15: 465-474

Evers-Kiebooms G, Cassiman J-J, Van den Berghe H, d'Ydewalle G (1987) Genetic Risk, Risk Perception and Decision Making. Birth Defects 23

Evers-Kiebooms G (1987) Decision making in Huntington's disease and cystic fibrosis. Birth Defects 23: 115-149

Evers-Kiebooms G, Denayer L, Van den Berghe H (1990) A child with cystic fibrosis:  II. Subsequent family planning decisions, reproduction and use of prenatal diagnosis. Clin Genet 37: 207-215

Evers-Kiebooms G, Fryns J-P, Cassiman J-J, Van den Berghe H (1992) Psychosocial Aspects of Genetic Counseling. 28

Evers-Kiebooms G, Denayer L, Welkenhuysen M, Cassiman J-J, Van den Berghe H (1994) A stigmatizing effect of the carrier status for cystic fibrosis? Clin Genet 46: 336-343

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