|
Bibliographic
Database on Psychosocial
Genetic Counseling - A-C
Dr. Weil compiled this database in the process of writing Psychosocial
Genetic Counseling, Oxford University Press, 2000. With a few exceptions,
compilation was completed in December 2000, and it has not been updated since
then.
Ablon J
(1984) Little People in America:
The Social Dimensions of Dwarfism. Praeger, New York
Ablon J
(1988) Living with Difference:
Families with Dwarf Children. Praeger, New York
Abromovsky
I, Godmilow L, Hirschorn K, Smith H (1980) Analysis of a follow-up
study of genetic counseling. Clin Genet 17: 1-12
Akamatsu
NN (1998) The talking oppression blues:
Including the experience of power/powerlessness in the
teaching of "cultural sensitivity". In: McGoldrick M
(ed) Re-visioning Family Therapy:
Race, Culture, and Gender in Clinical Practice. Guilford,
New York, pp 129-143
American
Society of Human Genetics Social Issues Committee and American
College of Medical Genetics Social E, and Legal Issues Committee
(2000) ASHG/ACMG statement: Genetic
testing in adoption. Am J Hum Genet 66: 761-767
Anderson
ML, Collins PH (1995) Race, Class, and Gender
Belmont Wadsworth
Antley
RM (1976) Variables in the outcome of genetic counseling. Soc Biol
23: 108-115
Antley
RM (1979) Genetic counseling for parents of a baby with Down's
syndrome. In: Kessler S (ed) Genetic Counseling:
Psychological Dimensions. Academic Press, New York, pp
115-133
Applebaum
EG, Firestein SK (1983) A Genetic Counseling Casebook. Free Press,
New York
Arnold
JR, Winsor EJT (1984) The use of structured scenarios in genetic
counselling. Clin Genet 25: 485-490
Arnos
KS (1990) Special considerations in genetic counseling with the
deaf population. Birth Defects 26: 199-202
Asch A
(1989) Reproductive technology and disability. In: Cohen S, Taub N
(eds) Reproductive Laws for the 1990s. Humana, Clifton NJ, pp
69-124
Ayme S,
Macquart-Moulin G, Julian-Reynier C, Chabal F, Giraud F (1993)
Diffusion of information about genetic risk within families.
Neuromuscul Disord 3: 571-574
Baird
MA, Doherty WJ (1986) Family resources in coping with serious
illness. In: Karpel MA (ed) Family Resources:
The Hidden Partner in Family Therapy. Guilford, New York,
pp 359-383
Baker
DL, Schuette JL, Uhlmann WR (1998) A Guide to Genetic Counseling
New York Wiley-Liss
Baker
DL (1998) Interviewing techniques. In: Baker DL, Schuette JL,
Uhlmann WR (eds) A Guide to Genetic Counseling. Wiley-Liss, New
York, pp 55-73
Bartels
DM, LeRoy BS, Caplan AL (1993) Prescribing Our Future: Ethical Challenges in Genetic Counseling
New York Aldine
de Gruyter
Bartels
DM, LeRoy BS, McCarthy P, Caplan AL (1997) Nondirectiveness in
genetic counseling: A
survey of practitioners. Am J Med Genet 72: 172-179
Basch
MF (1980) Doing Psychotherpay. Basic Books, New York
Batts
VA (1990) An experiential workshop:
Introduction to multiculturalism. In: Stricker G,
Davis-Russell E, Bourg E, Duran E, Hammond WR, McHolland J, Polite
K, Vaught BE (eds) Toward Ethnic Diversification in Psychology
Education and Training. American Psychological Association,
Washington, pp 9-16
Baty BJ,
Venne VL, McDonald J, Croyle RT, Halls C, Nash JE, Botkin JR
(1997) BRCA1 testing: Genetic
counseling protocol development and counseling issues. J Genet
Counsel 6: 223-244
Baumeister
RF (1993) Self-esteem: The
Puzzle of Low Self-regard
New York Plenum
Baumeister
RF (1993) Understanding the inner nature of low self-esteem:
Uncertain, fragile, protective, and conflicted. In:
Baumeister RF (ed) Self-esteem: The Puzzle of Low Self-regard. Plenum, New York, pp 201-218
Baumeister
RF, Stillwell AM, Heatherton TF (1994) Guilt:
An interpersonal approach. Psychol Bull 115: 243-267
Baumiller
RC, Cunningham G, Fisher N, Fox L, Henderson M, Lebel R, McGrath
G, Pelias MZ, Porter I, Seydel F, Wilson NR (1996) Code of ethical
principles for genetics professionals: An
explication. Am J Med Genet 65: 179-183
Beeson
D, Golbus MS (1979) Anxiety engendered by amniocentesis. Birth
Defects 15: 191-197
Beeson
D (1984) Technological rhythms in pregnancy:
The case of prenatal diagnosis by amniocentesis. In: Duster
T, Garret K (eds) Cultural Perspectives on Biological Knowledge.
Ablex, Norwood NJ
Beeson
D, Golbus MS (1985) Decision making:
Whether or not to have prenatal diagnosis and abortion for
X-linked conditions. Am J Med Genet 20: 107-114
Beeson
D, Doksum T (1995) Family values and resistance to genetic
testing.
Beeson
D, Doksum T (2001) Family values and resistance to genetic
counseling. In: Hoffmaster B (ed) Bioethics in Context. Cambridge
University Press, Cambridge UK, pp 153-179
Benjamin
C, Colley A, Donnai D, Kingston H, Harris R, Kerzine-Storrar L
(1993) Neurofibromatosis type1 (NF1):
Knowledge, experience, and reproductive decisions of
affected patients and families. J Med Genet 30: 567-574
Benkendorf
JL (1987) Grieving and believing:
Helping parents through imperfect beginnings. Birth Defects
23: 25-35
Bennet
RL, Bird TD, Teri L (1993) Offering predictive testing for
Huntington disease in a medical genetics clinic:
Practical applications. J Genet Counsel 2: 123-137
Bennett
RL (1999) The Practical Guide to the Genetic Family History.
Wiley-Liss, New York
Berkenstadt
M, Shiloh S, Barkai G, Katznelson MB-M, Goldman B (1999) Perceived
personal control (PPC): A
new concept in measuring outcome of genetic counseling. Am J Med
Genet 82: 53-59
Bernhardt
BA (1997) Emperical evidence that genetic counseling is directive:
Where do we go from here? Am J Hum Genet 60: 17-20
Bernhardt
BA, Geller G, Strauss M, Helzlsouer KJ, Stefanek M, Wilcox PM,
Holtzman NA (1997) Toward a model informed consent process for
BRCA1 testing: A
qualitative assessment of women's attitudes. J Genet Counsel 6:
207-222
Berry
JW (1997) Immigration, acculturation, and adaptation. Applied
Psychology: An International Review 46: 5-34
Bérubé
M (1996) Life As We Know It. Vintage Books, New York
Bibring
GL (1959) Some considerations of the psychological processes in
pregnancy. Psychoanal Study Child 14: 113-212
Bibring
GL, Dwyer TF, Huntington DS, Valenstein AF (1961) A study of the
psychological processes in pregnancy and of the earliest
mother-child relationship: I.
Some propositions and comments. Psychoanal Study Child 16: 9-72
Biesecker
B, Magyari PA, Paul NW (1987) Strategies in genetic counseling:
II. Religious, cultural and ethnic influences on the
counseling process. Birth Defects 23
Biesecker
BB, Chen L, Israel J, Fine B, Mittman I (1996) Seeking common
ground: Dialogue
between disability rights & genetics. Perspectives in Genetic
Counseling 18: 1, 8
Biesecker
BB, Marteau TM (1999) The future of genetic counselling: An international perspective. Nat Genet 22: 133-137
Bighorn
S, Bighorn R (1990) Provision of services at the Fort Peck Indian
Reservation. Birth Defects 26: 117-120
Birenbaum
LK (1970) J Health Soc Behav 12: 55-
Black
RB (1979) The effects of diagnostic uncertainty and available
options on perceptions of risk. Birth Defects 15: 341-354
Black
RB (1981) Risk taking behavior:
Decision making in the face of genetic uncertainty. Soc
Work Health Care 7: 11-25
Black
RB (1991) Women's voices after pregnancy loss:
Couples' patterns of communication and support. Soc Work
Health Care 16: 19-36
Black
RB (1993) Psychosocial issues in reproductive genetic testing and
pregnancy loss. Fetal Diagn Ther 8: 164-173
Black L
(1996) Families of African origin:
An overview. In: McGoldrick M, Giordano J, Pearce JK (eds)
Ethnicity and Family Therapy, 2nd edn. Guilford, New York, pp
57-84
Blanck
G, Blanck R (1979) Ego Psychology II:
Psychoanalytic Developmental Psychology. Columbia
University Press, New York
Bleiker
EMA, Aaronson NK, Menko FH, Hanh DEE, van Asperen CJ, Rutgers EJT,
ten Kate LP, Leschot NJ (1997) Genetic counseling for hereditary
cancer: A pilot study
on experiences of patients and family members. Patient Education
and Counseling 32: 107-116
Bloch EV, DiSalvo M, Hall BD, Epstein CJ (1979) Alternative ways of
presenting empiric risks. Birth Defects 15: 233-244
Bloch
M, Adam S, Wiggins S, Huggins M, Hayden MR (1992) Predictive
testing for Huntington disease in Canada:
The experience of those receiving an increased risk. Am J
Med Genet 42: 499-507
Bloom
B-A (1987) Support for families with unsuccessful pregnancies.
Birth Defects 23: 45-51
Bluebond-Langner
M (1978) The Private Worlds of Dying Children
Princeton NJ Princeton
University Press
Blumberg
B (1984) The emotional implications of prenatal diagnosis. In:
Emery AEH, Pullen IM (eds) Psychological Aspects of Genetic
Counseling. Academic Press, London, pp 201-217
Blumenthal
D, Heimler A, Edelman C, Engleberg J, Feldman BD, Sitron N (1990)
A protocol for genetic counseling following abnormal prenatal
diagnosis. Birth Defects 26: 157-160
Bohart
AC (1995) The person-centered psychotherapies. In: Gurman AS,
Messer SB (eds) Essential Psychotherapies:
Theory and Practice. Guilford, New York, pp 85-127
Bosco
AF (2000) Caring for the care-giver:
The benefit of a peer supervision group. J Genet Counsel 9:
425-430
Bosk C
(1993) All God's Mistakes. Chicago Press, Chicago
Bosk C
(1993) The workplace ideology of genetic counselors. In: Bartels
DM, LeRoy BS, Caplan AL (eds) Prescribing Our Future:
Ethical Challenges in Genetic Counseling. Aldine de Gruyter,
New York, pp 25-37
Bottorff
JL, Ratner PA, Johnson JL, Lovato CY, Joab SA (1998) Communicating
cancer risk information; The
challenges of uncertainty. Patient Education and Counseling 33:
67-81
Bouvier
LF, Gardner R (1986) Immigration to the U.S.:
The unfinished story. Population Bull 41: 5-8
Bowman
JE (1977) Genetic screening programs and public policy. Phylon 38:
117-142
Bowman
JE (1991) Invited editorial:
Prenatal screening for hemoglobinopathies. Am J Hum Genet
48: 433-438
Boyd-Franklin
N (1989) Black Families in Therapy:
A Multisystems Approach. Guilford, New York
Bradby
H (1996) Genetics and racism. In: Marteau T, Richards M (eds) The
Troubled Helix: Social
and Psychological Implications of the New Human Genetics.
Cambridge University Press, Cambridge UK, pp 295-316
Brandt
AM (1978) Racism and research:
The case of the Tuskegee syphilis study. Hastings Cent Rep
8: 21-29
Brenneman
G (1997) Chronic and disabling conditions among American Indian
and Alaskan native children and youth. Fam Syst Health 15: 263-274
Brensinger
JD, Laxova R (1995) The Amish:
Perceptions of genetic disorders and services. J Genet
Counsel 4: 27-48
Bridge
M, Iden S, Cunniff C, Meaney FJ (1998) Improving access to and
utilization of genetic services in Arizona's Hispanic population.
Community Genet 1: 166-168
Bringle
RG, Antley RM (1980) Elaboration of the definition of genetic
counseling into a model for counselee decision-making. Soc Biol
27: 304-318
Brookshire
G (1999) Book review. J Genet Counsel 8: 127-128
Brown
FH (1989) The impact of death and serious illness on the family
life cycle. In: Carter B, McGoldrick M (eds) The Changing Family
Life Cycle: A Framework for Family Therapy, 2nd edn. Allyn and Bacon,
Boston, pp 457-482
Brown JH, Christensen DN (1999) Family Therapy:
Theory and Practice, 2nd edn. Brooks/Cole, Pacific Grove CA
Browner
CH, Press NA (1995) The normalization of prenatal diagnostic
screening. In: Ginsburg FD, Rapp R (eds) Conceiving the New World
Order: The Global
Politics of Reproduction. University of California Press,
Berkeley, pp 307-322
Browner
CH, Preloran HM (1999) Male partners' role in Latinas'
amniocentesis decisions. J Genet Counsel 8: 85-108
Brunger
F, Lippman A (1995) Resistance and adherence to the norms of
genetic counseling. J Genet Counsel 4: 151-168
Buckman
R (1992) How to Break Bad News:
A Guide for Health Care Professionals. Johns Hopkins
University Press, Baltimore
Bukatko
D, Daehler MW (1992) Child Development:
A Topical Approach. Houghton Mifflin, Boston
Burke
BM (1992) Genetic counselor attitudes towards fetal sex
identification and selective abortion. Soc Sci Med 34: 1263-1269
Burke
BM, Kolker A (1994) Variation in content in prenatal genetic
counseling interviews. J Genet Counsel 3: 23-38
Burke
BM, Kolker A (1994) Directiveness in prenatal genetic counseling.
Women Health 22: 31-53
Butani
P (1974) Reactions of mothers to the birth of an anomalous infant:
A review of the literature. Matern Child Nurs J 3: 59-76
Byng-Hall
J (1995) Rewriting Family Scripts:
Improvisation and Systems Change. Guilford, New York
Callanan
NP, Bloom D, Sorenson JR, DeVellis BM, Cheuvront B (1995) CF
carrier testing: Experience
of relatives. J Genet Counsel 4: 83-95
Cameron
N (1963) Personality Development and Psychopathology:
A Dynamic Approach. Houghton Mifflin, Boston
Campbell
JD (1990) Self-esteem and clarity of the self-concept. J Pers Soc
Psychol 59: 538-549
Caplan
A (1979) Genetic counseling, medical genetics and theoretical
genetics: An
historical overview. Birth Defects 15: 21-31
Caplan
AL (1993) Neutrality is not morality:
The ethics of genetic counseling. In: Bartels DM, LeRoy BS,
Caplan AL (eds) Prescribing Our Future:
Ethical Challenges in Genetic Counseling. Aldine de Gruyter,
New York, pp 149-165
Caplan
AL, Kolker A, Merideth Burke B (1994) Preface. Prenatal Testing:
A Sociological Perspective. Bergin & Garvey, Westport
CT
Cappelli
M, McGrath PJ, Heick CE, MacDonald NE, Feldman W, Rowe P (1989)
Chronic disease and its impact:
The adolescent's perspective. J Adolesc Health Care 10:
283-288
Capron
AM, Lappe M, Murray RF, Polwedge TM, Twiss SB, Bergsma D (1979)
Genetic Counseling: Facts,
Values and Norms. Birth Defects 15
Carrese
JA, Rhodes LA (1995) Western bioethics on the Navajo Reservation:
Benefit or harm? JAMA 274: 826-829
Carter
CO, Roberts JAF, Evans KA, Buck AR (1971) Genetic clinic: A follow-up. Lancet 1: 281-285
Carter
B, McGoldrick M (1989) The changing family life cycle: a framework for family therapy. In: Carter B, McGoldrick M (eds)
The Changing Family Life Cycle:
A Framework for Family Therapy, 2nd edn. Ilyn and Bacon,
Boston, pp 3-28
Carter
RT (1991) Cultural values: A
review of empirical research and implications for counseling.
Journal of Counseling and Development 70: 164-173
Carter
RT, Qureshi A (1995) A typology of philosophical assumptions in
multicultural counseling and training. In: Ponterotto JG, Casas JM,
Suzuki LA, Alexander CM (eds) Handbook of Multicultural
Counseling. SAGE, Thousand Oaks, pp 239-262
Census
USBot (1992) Population Projections of the United States by Age,
Race, Sex and Hispanic Origin 1992-2050. U.S. Government Printing
Office, Washington DC
Census
USBot (1998) Current Population Reports, Series P23-194,
Population Profile of the United States:
1997. U.S. Government Printing Office, Washington DC
Chalmers
K, Thomson K (1996) Coming to terms with the risk of breast
cancer: Perceptions
of women with primary relatives with breast cancer. Qualitative
Health Research 6: 256-282
Chan S
(1992) Families with Asian roots. In: Lynch E, M H (eds)
Developing Cross-Cultural Competence:
A Guide for Working with Young Children and Their Familes.
Paul H Brookes, Baltimore
Chapple
A, May C, Campion P (1995) Lay understanding of genetic disease:
A British study of families attending a genetic counseling
service. J Genet Counsel 4: 281-300
Chapple
A, May C, Campion P (1995) Parental guilt:
The part played by the clinical geneticist. J Genet Counsel
4: 179-192
Chapple
A, Campion P, May C (1997) Clinical terminology:
Anxiety and confusion amongst families undergoing genetic
counseling. Patient Education and Counseling 32: 81-91
Chase
GA, Faden RR, Holtzman NA, Chwalow AJ, Leonard CO, Lopes C, Quaid
K (1986) Assessment of risk by pregnant women:
Implications for genetic counseling. Soc Biol 33: 57-64
Chethik
M (1989) Techniques of Child Therapy:
Psychodynamic Strategies. Guilford, New York
Chodoff
P, Friedman SB, Hamburg DA (1964) Stress, defenses and coping
behavior: Observations
in parents of children with malignant disease. Am J Psychiatry
120: 743-749
Clark
SL, DeVore GR (1989) Prenatal diagnosis for couples who would not
consider abortion. Prenat Diagn 73: 1035-1037
Clarke
A (1991) Is non-directive genetic counseling possible? Lancet 338:
998-1001
Clarke
A (1994) Genetic Counseling:
Practice and Principles
London Routledge
Clarke
AJ (1997) The process of genetic counseling:
Beyond non-directiveness. In: Harper PS, Clarke AJ (eds)
Genetics, Society, and Clinical Practice. Bios Scientific, Oxford,
pp 179-200
Coates
D, Winston T (1983) Counteracting the deviance of depression:
Peer support groups for victims. Journal of Social Issues
39: 169-194
Cochran JW, Langston D, Woodward C (1988) Changing Our Power: An Introduction to Women's Studies Dubuque IO Kendall-Hunt
Cohen
S, SYme SL (1985) Social Support and Health
Orlando FL Academic
Press
Cohen
LH, Fine BA, Pergament E (1998) An assessment of ethnocultural
beliefs regarding the causes of birth defects and genetic
disorders. J Genet Counsel 7: 15-29
Coleman
J (1993) Adolescence in a changing world. In: Jackson S,
Rodriguez-Tomé H (eds) Adolescence and its Social Worlds.
Lawrence Erlbaum, Hove UK, pp 251-268
Comas-Diaz
L, Jacobsen FM (1991) Ethnocultural transference and
countertransference in the therapeutic dyad. Am J Orthopsychiatry
61: 392-402
Condit
CM, Ofulue N, Sheedy KM (1998) Determinism and mass-media
portrayals of genetics. Am J Hum Genet 62: 979-984
Cook JA
(1984) Influence of gender on the problems of parents of fatally
ill children. Journal of Psychosocial Oncology 2: 71-91
Copley
TT, Wiggins S, Dufrasne S, Bloch M, Adam S, McKellin W, Hayden MR
(1995) Are we all of one mind?
Clinicians' and patients' opinions regarding the
development of a service protocol for predictive testing for
Huntington disease. Am J Med Genet 58: 59-69
Costello
A (1987) Psychosocial management of patients in a fetal medicine
and surgery program. Birth Defects 23: 62-74
Counseling
AHCoG (1975) Genetic counseling. Am J Hum Genet 27: 240-242
Counselors
NSoG (1992) Code of ethics. J Genet Counsel 1: 41-43
Cowan
RS (1993) Aspects of the history of prenatal diagnosis. Fetal
Diagn Ther 8: 10-17
Côté
GB (1982) Odds in genetic counseling. J Med Genet 19: 455-457
Cramer
P (2000) Defense mechanisms in psychology today. American
Psychologist 55: 637-646
Crohn J
(1997) Asian intermarriage: Love
versus tradition. In: Lee E (ed) Working With Asian Americans:
A Guide for Clinicians. Guilford, New York
Crohn J
(1998) Intercultural couples. In: McGoldrick M (ed) Re-visioning
Family Therapy: Race,
Culture, and Gender in Clinical Practice. Guilford, New York, pp
295-308
(Updated
12/9/05)
|
