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asdfThe Pacific
Northwest Regional Genetics Group Home Page
(PacNoRGG)
This web site provides
genetics information and publications with links to a few national,
comprehensive sites. PacNoRGG publications, which may be useful
to genetic service providers and consumers, can be downloaded
from our web site.
The Pacific Northwest Regional Genetics Group (PacNoRGG) is no
longer active. From 1984 - 2002, it was funded by the Maternal &
Child Health Bureau (MCHB) of the federal Health Resources Services
Administration (HRSA). Staff from the Oregon
Health & Science University (OHSU) Child Development and
Rehabilitation Center (CDRC), overseen by Kerry
Silvey, MA, CGC, continue to maintain the website and
publications. The website and online versions of publications were
last reviewed June 2005. Out-of-date materials were either removed
or updated.
What's On Our Web
Site
Genetics Services in AK, ID, OR &
WA
Clinical Genetics: Please see
GeneReviews(TM) National Genetics and Prenatal
Diagnosis Clinic Directory
State's Genetics Web Pages Alaska
Idaho-no web page Oregon
Washington
PacNoRGG
Publications
Hard copies of PacNoRGG
publications are no longer available. They can be viewed, printed, or
downloaded.
Publications
List - with links to online versions
Genetics Northwest Newsletter
PacNoRGG
Resources
State Assessment Tool - A framework for comparing a state's genetics
services to the CORN Guidelines for Clinical Genetic
Services for the Public's Health. Developed in collaboration
with the Coalition of State Genetics Coordinators.
Word
Version Adobe
Acrobat Version
Related Resources
2004-2005
March of Dimes Genetics and Primary Care In-Services and Resource
Materials
Download
Microsoft's free PowerPoint Viewer
Cancer In-Services:
PPT: Familial Cancer Risk
Assessment: Breast and Ovarian Cancer
PPT: Familial Cancer Risk
Assessment: Colorectal Cancer
Genetics Website
Reference List: Adult/Cancer
Word
Version Adobe
Acrobat Version
Cancer Genetic Counseling
and Risk Assessment: Who to Refer?
Word
Version Adobe
Acrobat Version
Preconception/Prenatal Genetic Screening
In-Services:
PPT: Ethnicity-Based
Genetic Carrier Screening
PPT: What's New in
Prenatal Genetic Services?
PPT: What's New in
Maternal Serum Screening?
Prenatal/Preconception
Family History Questionnaire
Word
Version Adobe
Acrobat Version
Family History
Assessment/Management Guide Word
Version Adobe
Acrobat Version
Genetics Web Site
Reference List - Prenatal/Preconception Word
Version Adobe
Acrobat Version
Genetic Carrier
Screening: Options for Persons of Ashkenazi Jewish Ancestry Word
Version Adobe
Version
General In-service Resources:
Oregon Genetics Clinic
Contact List Word
Version Adobe
Acrobat Version
Indications for Referral:
Prenatal Word
Version Adobe
Acrobat Version
Indications for Referral:
Pediatric Word
Version Adobe
Acrobat Version
Indications for Referral:
Adult Word
Version Adobe
Acrobat Version
Bibliographic
Database on Psychosocial Genetic Counseling
Continuing a Pregnancy with a Fetal
Abnormality
National
Resources, Web Sites, and Other Information
Pregnancy
and Pre-Pregnancy Brochures by Providence Midwifery
Care
Washington Critical Elements of Genetic
Evaluation & Genetic Counseling
Privacy
Policy, Authorship, Non-Commercial Policy
Trouble
Shooting for helpful suggestions on opening
pages/publications
All material within this website is
presented as a public service. The information is not intended to
replace medical advice. For answers to specific medical genetics,
genetic counseling, and genetic testing questions, contact a
healthcare provider or genetics clinic. Personal information and
email addresses are NOT tracked or collected. For more information
about our privacy policy, non-commercial policy, and authors, please
see our privacy
page.
For information
about this web site and PacNoRGG publications, contact:
Kerry Silvey, MA, CGC
Public Health Genetics Specialist
Oregon Health & Science University
Portland, Oregon
Mailing Address:
Children's Development & Rehabilitation Center (CDRC)
Clinical Services Building
901 East 18th
Avenue
Eugene, OR 97403-5254
Phone: 541/346-2610
Fax: 541/346-5844
ksilvey@uoregon.edu
PacNoRGG subscribes to the HONcode
principles of the Health
On the Net Foundation
This information is
provided through the Child Development and Rehabilitation Center
(CDRC), part of the Oregon Health Sciences University (OHSU), funded
through the Pacific Northwest Regional Genetics Group (PacNoRGG)
grant from the DHHS/HRSA/MCHB Maternal & Child Health Bureau
(#MCJ-421002-13) and in partnership with the Institute for Child
Health Policy supported though the MCH-NetLink grant from the
DHHS/HRSA/MCHB Maternal & Child Health Bureau
(MCJ-127413).
 
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(Last Updated
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