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Grant Initiative: Planning Grants to Support the Promotion of the
Early Identification
of Children with Special Health Needs through Infrastructure
Development
Objectives:
To
develop need assessment for program and informatics integration.
To
develop a framework for state genetics plan and identify the common
elements within the state plans.
To
establish a collaborative network of partnerships among the states.
Outcomes:
Develop
a community based child health profile.
Identify
a mechanism for integrating surveillance data within public health
agencies.
Enable
public health entities to oversee and track health services within a
community.
Decrease
the fragmentation and duplication of the categorical delivery of
care.
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Tuesday,
November 2, 1999
7:45 am – 8:30 am
8:30
am – 8:45 am
8:45
am – 9:00 am
9:00
am – 9:30 am
9:30 am – 10:00 am
10:00
am – 10:30 am
10:30
am – 10: 45 am
10:45
am – 11:30 am
11:30
am – 12:00 pm
12:00pm
– 12:45 pm
12:45
pm – 1:30 pm
1:30
pm – 2:15 pm
2:15
pm – 3:00 pm
3:00
pm – 3:45 pm
3:45 – 4:00
4:00
– 4:45
4:45 – 5:30
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Networking
Breakfast
Welcome
& Introductions
Merle McPherson
Facilitator: John Reiss
Charge
To The Group: Outcomes &
Products
Michele Lloyd-Puryear
The Human Genome Project : Implementation into
Practice
Facilitating
the integration of genetic technologies into health care and
public health activities while utilizing genetic information
in practice.
Presenter: Bob Fineman
(Materials)
Followed by Open Discussion
Integration
of Genetics Into Public Health:
Guidelines
for Genetics Services
A Review and Evaluation of the Guidelines for
Clinical Genetic Services for the Public's Health
Presenter: Brad Therrell
Followed by Open Discussion
Community-Based Child Health
Profile
Outlining the essential elements of a Child Health
Profile.
Presenter: Peter Simon
Followed by open discussion.
Break
Health
Information Systems
Encouraging the linking of screening programs with
other points of early identification through the use of an
integrated health information system.
Presenters:
Robb Linkins and Martin Wolfson (materials)
Followed by open discussion.
Working Lunch
Team Meeting 1
Arizona
Topic: Community-Based Child Health Profile
Resource Team: Michele Puryear, John Reiss
Massachusetts
Topic: Organization and Administration
Resource Team: Brad Therrell, Sylvia Au
Colorado
Topic: Health Services and Prevention
Resource Team: Tom Tonniges, Deb Doyle, Merle
McPherson
Iowa
Topic: Data and Information Systems
Resource Team: Robb Linkins, Martin Wolfson
Missouri
Topic: Epidemiology and Health Services Research
Resource Team: Bob Fineman, Larry Edmunds, Marie Mann
Rhode Island
Topic: Consumer Involvement
Resource Team: Maricela Aguilar, Patti Hackett
Wisconsin
Topic: Financing
Resource Team: Cathy Hess, Heather Pierce, Kay
Johnson
Team
Meeting 2
Arizona
Topic: Financing
Resource Team: Cathy Hess, Heather Pierce, Kay
Johnson
Massachusetts
Topic: Community-Based Child Health Profile
Resource Team: Michele Puryear, John Reiss
Colorado
Topic: Organization and Administration
Resource Team: Brad Therrell, Sylvia Au
Iowa
Topic: Health Services and Prevention
Resource Team: Tom Tonniges, Deb Doyle, Merle
McPherson
Missouri
Topic: Data and Information Systems
Resource Team: Robb Linkins, Martin Wolfson
Rhode Island
Topic: Epidemiology and Health Services Research
Resource Team: Bob Fineman, Larry Edmunds, Marie
Mann
Wisconsin
Topic: Consumer Involvement
Resource Team: Maricela Aguilar, Patti Hackett
Team Meeting 3
Arizona
Topic: Consumer Involvement
Resource Team: Maricela Aguilar, Patti Hackett
Massachusetts
Topic: Financing
Resource Team: Cathy Hess, Heather Pierce, Kay
Johnson
Colorado
Topic: Community-Based Child Health Profile
Resource Team: Michele Puryear, John Reiss
Iowa
Topic: Organization and Administration
Resource Team: Brad Therrell, Sylvia Au
Missouri
Topic: Health Services and Prevention
Resource Team: Tom Tonniges, Deb Doyle, Merle
McPherson
Rhode Island
Topic: Data and Information Systems
Resource Team: Robb Linkins, Martin Wolfson
Wisconsin
Topic: Epidemiology and Health Services Research
Resource Team: Bob Fineman, Larry Edmunds, Marie
Mann
Team Meeting
4
Arizona
Topic: Epidemiology and Health Services Research
Resource Team: Bob Fineman, Larry Edmunds, Marie
Mann
Massachusetts
Topic: Consumer Involvement
Resource Team: Maricela Aguilar, Patti Hackett
Colorado
Topic: Financing
Resource Team: Cathy Hess, Heather Pierce, Kay
Johnson
Iowa
Topic: Community-Based Child Health Profile
Resource Team: Michele Puryear, John Reiss
Missouri
Topic: Organization and Administration
Resource Team: Brad Therrell, Sylvia Au
Rhode Island
Topic: Health Services and Prevention
Resource Team: Tom Tonniges, Deb Doyle, Merle
McPherson
Wisconsin
Topic: Data and Information Systems
Resource Team: Robb Linkins, Martin Wolfson
Team
Meeting 5
Arizona
Topic: Data and Information Systems
Resource Team: Robb Linkins, Martin Wolfson
Massachusetts
Topic: Epidemiology and Health Services Research
Resource Team: Bob Fineman, Larry Edmunds, Marie
Mann
Colorado
Topic: Consumer Involvement
Resource Team: Maricela Aguilar, Patti Hackett
Iowa
Topic: Financing
Resource Team: Cathy Hess, Heather Pierce, Kay
Johnson
Missouri
Topic: Community-Based Child Health Profile
Resource Team: Michele Puryear, John Reiss
Rhode Island
Topic: Organization and Administration
Resource Team: Brad Therrell, Sylvia Au
Wisconsin
Topic: Health Services and Prevention
Resource Team: Tom Tonniges, Deb Doyle, Merle
McPherson
Break
Team Meeting
6
Arizona
Topic: Health Services and Prevention
Resource Team: Tom Tonniges, Deb Doyle, Merle
McPherson
Massachusetts
Topic: Data and Information Systems
Resource Team: Robb Linkins, Martin Wolfson
Colorado
Topic: Epidemiology and Health Services Research
Resource Team: Bob Fineman, Larry Edmunds, Marie
Mann
Iowa
Topic: Consumer Involvement
Resource Team: Maricela Aguilar, Patti Hackett
Missouri
Topic: Financing
Resource Team: Cathy Hess, Heather Pierce, Kay
Johnson
Rhode Island
Topic: Community-Based Child Health Profile
Resource Team: Michele Puryear, John Reiss
Wisconsin
Topic: Organization and Administration
Resource Team: Brad Therrell, Sylvia Au
Team Meeting 7
Arizona
Topic: Organization and Administration
Resource Team: Brad Therrell, Sylvia Au
Massachusetts
Topic: Health Services and Prevention
Resource Team: Tom Tonniges, Deb Doyle, Merle
McPherson
Colorado
Topic: Data and Information Systems
Resource Team: Robb Linkins, Martin Wolfson
Iowa
Topic: Epidemiology and Health Services Research
Resource Team: Bob Fineman, Larry Edmunds, Marie
Mann
Missouri
Topic: Consumer Involvement
Resource Team: Maricela Aguilar, Patti Hackett
Rhode Island
Topic: Financing
Resource Team: Cathy Hess, Heather Pierce, Kay Johnson
Wisconsin
Topic: Community-Based Child Health Profile
Resource Team: Michele Puryear, John Reiss |
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