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Agenda Translating Recommendations into Actions November 1, 1999 |
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Agenda Translating Recommendations into Actions November 1, 1999 |
| Monday,
November 1, 1999 |
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Objectives: To
identify strategies for implementing recent recommendations to
achieve Healthy People 2010 objectives for newborn screening and
genetics. Outcomes: 1. Identify
for HRSA and MCHB priority areas in the translation of
recommendations into action.
2. Identify recommendations for
the use of SPRANS funds in the translation of recommendations
into action. Post Meeting Products: MCHB Action Plan
for the translation of recommendations into action. Participants/ Leaders in the field from
State Agencies, MCHB Funded Projects, Consumer Organizations, Key
Geneticists, Professional Organizations, NCSL, and Federal Agencies.
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9:00
am - 9:30 am
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Registration Welcome & Introductions Claude Earl Fox Peter C. Van Dyck Merle McPherson Translating Recommendations into Service and Practice: Roles and Implications for HRSA and MCHB The Human Genome Project: How does this project offer a new paradigm for health promotion? Presenter: Ed McCabe State Genetic Resources and Services: Findings of a national survey Presenter: JoAnn Lindenmeyer An Ethnocultural and Geographical Approach Toward Genetic Literacy Promoting the public understanding of the benefits, risks, and limitations of genetic testing and the implications of genetic information. Presenter: Kathleen Rand Reed Charge to the Group Michele Lloyd-Puryear Consumers as a resource Speakers: Mary Davidson, Alliance of Genetic Support Groups and Donna Olsen, Family Voices Reaching New Horizons for Newborn Screening Issues, Forces, & Factors Facilitator: Ed McCabe Resource: Brad Therrell Facilitator: Bob Fineman Resource: Kay Johnson Facilitator: Paul Nannis Resource: JoAnn Lindenmeyer Facilitator: Joe McInerney Resource: Kathleen Reed Promoting Partnerships for Successful Outcomes for Families & Professionals Facilitator: Mary Davidson Resource: Donna Olsen Michele Lloyd-Puryear Merle McPherson Facilitator: Kay Johnson Group Discussion |