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Jean
Anderson MA ARNP
State Coordinator
Iowa Dept of Public Health
Lucas Street Office Bldg 5th Floor
321 East 12th St
DeMoines IA 50319
PH 515/281-7584
Fax 515/242-6384
janderson@health.state.ia.us
Polly
Arango
Co-founder/Director
Family Voices
1456 Hwy 313
PO Box 769
Algodones NM 87001
PH 505/867-2368
Fax 505/867-6517
parango@familyvoices.org
Sylvia
Au
State Genetics Coordinator
Children with Special Health
Care Needs Branch (CSHCN)
Hawaii State Dept Of Health
741 Sunset Ave
Honolulu HI 96816
PH 808/733-9055
Fax 808/733-9068
sau@hgea.org
Timothy
Baker
Deputy Director
Office of Genetics & Disease Prevention
4770 Buford Highway MS K-28
Atlanta, GA 30341
PH 770/488-3235
Fax 770/488/3236
tgb2@cdc.gov
Scott
Becker
Executive Director
Assoc of Public Health Laboratories
1211 Connecticut Ave NW Suite 608
Washington DC 20036
PH 202/822-5227x201
Fax 202/887-5098
Sbecker@aphl.org
Tom
Bleecker PhD
Research Director
World Institute on Disability
510 16th St Suite 100
Oakland CA 94612-1500
PH 510/251-4338
Fax 510/763-4109
tom@wid.org
Jeff
Botkin
Professor of Pediatrics and Medical Ethics
University of Utah
100 North Medical Dr
Salt Lake City UT 84113
PH 801/588-3649
Fax 801/588-3642
botkin@howard.genetics.utah.edu
Kenneth
Bridges MD
Director
Brigham & Women’s Hospital
Division of Hematology
75 Francis St
Boston MA 02115
PH 617/732-5842
Fax 617/975-0876
bridges@calvin.bwh.harvard.edu
Gil
Buchanan MD
Medical Director
Childrens Medical Svcs
Arkansas Dept of Human Services
500 South University Ste 200
Little Rock AR 72205
PH 501/682-8202
Fax 501/682-8247
Gil.Buchanan@medicaid.state.ar.us
David Carpenter, PhD
State laboratory Director
Illinois Department of Public Health
825 North Rutledge Street
PO Box 19435
Springfield, IL 62794-9453
PH (217) 782-6562
Fax (217) 524-7924
dcarpent@idph.state.il.us
Sarah
Carr
Senior Policy Analyst, Executive Secretary
Secretary’s Adv Comm on Genetic Testing
Office of Recombinant DNA Act
National Institute of Health
6000 Executive Blvd Ste 302
Bethesda MD 20892-7010
PH 301/435-6753
Fax 301/496-9839
sc112@nih.gov
Ellen
Clayton
Div of General Pediatrics & School of Law
Vanderbilt University
Medical Center East 5028
Nashville TN 37332-8555
PH 615/936-2425
Fax 615/936-2419
ellen.w.clayton@vanderbilt.edu
George
Cunningham
Chief, Genetic Disease Branch
1947 Center Street 3rd
Floor
Berkley CA 94704
PH 510/540-2552
Fax 510/849-5102
gcunning@dhs.ca.gov
Mary
Davidson
Executive Director
Alliance of Genetic Support Groups
4301 Connecticut Ave NW Ste
404
Washington DC 20008-2304
PH 202/966-5557x207
Fax 202/966-8553
mdavidson@geneticsalliance.org
Frank
Desposito
Interim Chairman
UMDMJ-New Jersey Medical School
Dept of Pediatrics
185 South Orange Ave RM F-540
Newark NJ 07103
PH 973/972-5276
Fax 973/972-0178
Amy
Fine BSN MPH
Health Policy/ Program Consultant
3372 Stuyvescant Place NW
Washington DC 20015
PH 202/966-6361
Fax 202/966-8439
afinehome@aol.com
Bob
Fineman PhD MD
Medical Consultant
Washington State Dept of Health
1511 Third Ave Ste 808
Seattle WA 98101-1632
PH 206/464-6545
Fax 206/389-2812
drbob@u.washington.edu
Jamie
Frias
Director
University of South Florida
College of Medicine
Birth Defect Center
17 Davis Blvd
Tampa FL 33606
PH 813/233-2623
Fax 813/233-2624
jfrias@med.usf.edu
Alan Guttmacher, MD
Senior Advisor to the Director for Clinical Affairs
National Human Genome Research Institute
9000 Rockville Pike Bldg 31 Rm 4B09
Bethesda MD 20892
PH 301/402-0955
Fax 301/402-0837
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Garrett
Hall MAMC
Communications Associate
Inst For Child Health Policy
5700 SW 34th St Ste 323
Gainesville FL 32608-5367
PH 352/392-5904 x245
Fax 352/392-8822
grh@ichp.edu
Patti
Hackett, MEd
Senior Youth Policy Associate
Inst For Child Health Policy
5700 SW 34th St Ste 323
Gainesville FL 32608-5367
PH 352/392-5904 x241
Fax 352/392-8822
ph8@ichp.edu
Kathy
Hudson
Director of Policy and Public Affairs
National Human Genome Research Institute
9000 Rockville Pike Bldg 31
Rm 4B09
Bethesda MD 20892
PH 301/402-0955
Fax 301/402-0837
Kathyh@exchange.nih.gov
Kay
Johnson
President
Johnson Group Consulting Inc
175 Red Pine Rd
Hinesburg VT 05461
PH 802/482-3005
Fax 802/482-3008
JohnsonGCI@aol.com
kj813@aol.com
Norman
Kahn MD
VP of Education and Science
AAFP
11400 Tomahawk Creek Pkwy
Leawood KS 66211
PH 800/274-2237x6500
Fax 913/906-6092
nkahn@aafp.org
Celia
Kaye MD PHD
Professor and Chairman
Dept of Pediatrics
Univ of TX Hlth Science Ctr at San Antonio
7703 Floyd Curl Drive
San Antonio TX 78284-7802
PH 210/567-5202
Fax 210/567-1758
kaye@uthscsa.edu
Martha
King MPA MSW
Program Director
Health Services Program
Natl Conference of State
Legislatures (NCSL)
1560 Broadway Ste 700
Denver CO 80202-5140
PH 303/830-2200
Fax 303/863-8003
martha.king@ncsl.org
Deborah
Klein Walker EdD
Associate Commissioner
Bureau of Family and Community Health
Massachusetts Depart of Public Health
250 Washington St 5th Fl
Boston MA 02108-4619
PH 617/624-6090
Fax 617/624-6062
debbie.walker@state.ma.us
Harvey
Levy MD
Senior Associate in Medicine and Genetics
Medicine and Genetics
Children’s Hospital
300 Longwood Ave
Boston MA 02115
PH 617/355-6346
Fax 617/355-3461
levyh@a1.tch.harvard.edu
Jo-Ann
Lindenmeyer MPH DVM
Chronic Disease Epidemiologist
RI Dept of Health
3 Capitol Hill
Providence RI 02908-5097
PH 401/222-1394x116
Fax 401/222-4415
jml@ede.gov
Robert
Linkins
Center for Disease Control
Data Management Division
Systems Development Branch
1600 Clifton Road NE
Atlanta, GA 30333
PH 404/639-8728
Fax 404/639-8548
rx13@cdc.gov
Michele
Lloyd-Puryear PhD
Branch Chief
Genetics Services Branch
Maternal and Child Health Bureau MCHB
Parklawn Bldg Rm 18A-20
5600 Fishers Ln
Rockville, MD 20857
PH 301/443-8998
Fax 301/443-8604
Mpuryear@hrsa.gov
Bertram
Lubin MD
Director of Medical Research
Children's Hospital Oakland Rsrch Inst
5700 Martin Luther King, JR Way
Oakland, CA 94609
PH 510/450-7601
Fax 510/450-7910
blubin@chori.org
Marie
Mann MD MPH
Deputy Chief
Genetic Services Branch, MCHB
Parklawn Bldg Rm 18A-19
5600 Fishers Lane
Rockville MD 20857
PH 301/443-1080
Fax 301/443-8604
MMann@HRSA.gov
Donald
Mattison MD
Medical Director
March of Dimes
1275 Mamaroneck Ave
White Plains NY 10605
PH 914/997-4649
Fax 914/428-7849
Dmattison@modimes.org
Ed
McCabe MD PhD
Professor and Executive Chair
UCLA Dept. of Pediatrics
Mattel Children’s Hospital at UCLA
School of Medicine
10833 LeConte Ave Rm 22-412
MDCC
Los Angeles CA 90095-1752
PH 310/825-5095
Fax 310/206-4584
Emccabe@mednet.ucla.edu
Joseph
McInerney
The Johns Hopkins University
School of Medicine
1615 Thames Street
Baltimore MD 21231
PH 410/955-0455
Fax 410/955-0644
joemcinerney@genetic-medicine.org
Merle
McPherson MD MPH
Director
Div Of Svcs For Children With
Special Health Needs (DSCSHN)
Maternal & Child Health Bur, HRSA, DHHS
5600 Fishers Ln Rm 18A-27 Parklawn Bldg
Rockville MD 20857
PH 301/443-2350
Fax 301/443-1728
mmcpherson@hrsa.gov
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Ann
Merrifield
President
Genzyme Genetics
15 Pleasant Street Connector
Framingham MA 01701
PH 508/270-2346
Fax 508/872-5663
ann.merrifield@genzyme.com
Paul
Nannis
Director
Office of Planning
Evaluation and Legislation HRSA
5600 Fishers Lane Rm 1433
Rockville MD 20857
PH 301/443-2460
Fax 301/443-9270
pnannis@hrsa.gov
Edwin
Naylor PhD MPH
President
Neo Den Screening, Inc
110 Roessler Rd
Pittsburgh PA 15220
PH 412/341-8658
Fax 412/341-8926
ednaylor@neogenscreening.com
Donna
Olsen
Executive Director
Indiana Parent Info Ntwrk Inc
4755 Kingsway Dr Ste 105
Indianapolis IN 46205
PH 317/257-8683 x11
Fax 317/251-7488
familynetw@aol.com
Vivian
Ota-Wang
Professor
College of Education
Arizona State University
PO Box 870611
Tempe AZ 85283
PH 602/727-6933
Fax 480/965-0300
otawang@asu.edu
Renee
Paper Rn CCRN
Program Director
Hemophilia Foundation of Nevada
PO Box 90158
Henderson NV 89009
PH 702/564-4368
Fax 702/564-2299
hfnv@earthlink.net
Kathryn
Peppe Rn MS
Chief
Division of Family and Comm Health Svcs
Ohio Dept of Health
246 N High ST
PO Box 118
Columbus, OH 43266-0118
PH 614/466-3263
Fax 614/728-3616
kpeppe@gw.odh.state.oh.us
Pat
Peyser
Professor of Epidemiology
Director, Public Health Genetics Interdepartmental Concentration
Univ of MI School of Public
Health
Depart of Epidemiology 109
Ann Arbor MI 48109
PH 734/763-4077
Fax 734/764-3192
ppeyser@umich.edu
Heather
Pierce MPH
Sr. Analyst, Genetics Policy
The Association of State & Territorial
Health Officials (ASTHO)
1275 K St NW Ste 800
Washington DC 20005
PH 202/371-9090x248
Fax 202/371-9797
hpierce@astho.org
Dee
Quinn MS
President
Organization of Teratology Infor Serv
Univ of Arizona Health
Sciences Center
Dept of OBGYN
1501 North Campbell
Tucson AZ 85724
PH 520/626-4382
Fax 520/626-5115
dquinn@u.arizona.edu
Kathleen
Rand Reed
President
GEOGENESYS
Geographic Genetic Systems
1923 2nd St NW
Washington DC 20001-1667
PH 202/234-8074
Fax 202/234-2506
krreed@bellatlantic.net
John
Reiss PhD
Director of Policy & Program Affairs
Inst For Child Health Policy
5700 SW 34th St Ste 323
Gainesville FL 32608-5367
PH 352/392-5904 x224
Fax 352/392-8822
jgr@ichp.edu
Peter
Simon MD
Assistant Medical Director
Division of Family Health
Rhode Island Department of Health
3 Capitol Hill
Canon Building Rm 312
Providence RI 02908-5097
PH 401/222-5928
Fax 401/222-1442
peters@doh.state.ri.us
Syraj
Syed MAMC
Associate for Technology and Training
Institute for Child Health Policy
5700 SW 34th Street Suite 323
Gainesville FL 32608
PH 352/392-5904x249
Fax 352/392-8822
sys@ichp.edu
Brad
Therrell
Director
NNSGRC
1912 W Anderson Ln #210
Austin TX 78757
PH 512/454-6419
Fax 512/454-6509
therrell@uthscsa.edu
Thomas
Tonniges MD FAAP
Director
Dept of Community Pediatrics
141 NW Point Blvd
Elk Grove Village IL 60007-1098
PH 800/433-9016 4723
Fax 847/228-5097
ttonniges@aap.org
Martin
Wolfson
Vice President
Neometrics
104
Bellerose
Ave
East North Port, NY 11731
PH 800/645-3616
Fax 516/754-1049
mwolfson@neometrics.com
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